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Fighting PKD

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My name is Robyn. 10 years ago I was diagnosed with Poly Cystic Kidney Disease. It was truly hard to hear at 25. I've had to live with countless doctors appointments, trips to the hospital and more medication then I ever thought was possible for one person. I am in chronic severe pain everyday. I get  UTI and kidney Infections and stones. My immune system is horrible and my hair is falling out in clumps,Nausea and vomiting are a few of the symptoms I must deal with everyday. I have lost jobs,friends and family due to this disease and it's been hard not only physically mentally but emotionally. I've tried to stay strong for my beautiful girl who needs her mother. I have always tried to remain strong, but there is only so much one person can take. In the last year the disease has gotten worse and my doctors are trying everything under the sun just to keep the pain and other symptoms under control but with a disease with no cure they are doing the best they can. This is a very lonely and isolating disease. Work and time with the ones I love has suffered and I struggle to not only  pay normal bills but also my ever growing medical bills. I am not one to ever ask for help I tend to keep everything to myself but I fear without help I may not be able to continue my treatments see my doctors or afford my medication and that scares me more than anything. As of March I lost my job and good insurance. I am fighting for disability and all my funds have run out. I am now at risk of losing my apartment and can't help but feel like a failure. I'm scared beyond words and not sure what I am going to do.

Organizer

Robyn Heard
Organizer
Chicago, IL

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