Fighting off a new disease

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40 donors
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$1,940 raised of $5K

Fighting off a new disease

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Hi, I am Justin or Tito as my friends call me (Rocket Power). At the beginning of September I had broken out with what started to be a small rash that soon covered most of my body. I was hospitalized for two weeks and had multiple trips to the ER before and after via ambulance. 

The rash had brought joint pain and swelling afterwards and soon took my ability to walk and some nights I wasn't able to even move my arms. The pain was so severe that even some Narcotics wouldn't help until I would receive larger doses of Morphine and Dilaudid. 

I was being given full treatment at ECMC in Buffalo, NY with my own personal Med team. Through my stay there I had seen 12 different doctors, a dermatologist, and a Rheumatologist, and they all couldn't figure out what I have exactly. The latest diagnosis that I've been given is that I have a cross-breed between two different auto immune diseases of Leukocytoclastic Vasculitis piggy backed on top of Henoch-Schonlein purpura (HSP). The doctors think that due to my mother's family history of auto-immune diseases and my father's south-east Asian ethnicity I have a mutated form of both and currently the only case with this. 

Treatment currently is a large prescription of steroids over the next 6-8 weeks and treatment of any symptoms that occur. These symptoms when they come in work fast and are very painful and I can not afford to keep buying the needed creams, painkillers, or other items needed to help with the healing process. 

I am not someone who likes to ask for help a lot but it has come down to I can't do this on my own anymore and the pain is too unbearable to do nothing about it. Even my mental health has begun to decline rapidly from everything that has been going on. Everything donated here will go towards helping me improve and recover as I will not be returning to work for at least another month or two. I appreciate anyone that can help or even spread awareness for this.

Organizer

Justin Tito Lutfi
Organizer
Buffalo, NY
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