Fighting EB

First of all, let me start by thanking you for taking the time to read this message and to hopefully donate.

EB (Epidermolysis Bullosa) is a rare genetic connective tissue disorder that affects 1 out of 20,000 births in the USA alone.  The genetic condition causes easy blistering of the skin and there is currently no cure.  Management of the condition involves wound care, pain control, and prevention and treatment of complications.  The aforementioned management is extremely time consuming and financially draining; hence the creation of this page.

Let me tell you a little bit about my 5 year old nephew, Carlitos.  He was unfortunately born with this devastating condition but if not for his blisters that randomly appear on his body, you wouldn’t know it.  Where others would be down by the constant pain and tedious treatments; he soars above it all with his bright mind and cheerful personality.  He instantly brightens up a room with his smile and is always missed by his cousins when he can’t make a family function.  We are truly blessed to have such a bright and sweet kid in our family.

I’m actually starting this page behind my sister and brother in law’s back; sorry.  I know they would not want to burden anyone with their problems as they are both proud and hard working parents.  But hey, what are friends and family for if not to lend a hand when needed.