Fight For Susana & Family

As some of you may know Susana, my sister in law is currently at Emanuel Hospital in Portland fighting for her life. She went into the hospital with an elevated temp and has been fighting a battle ever since. Shortly after her fever broke her liver shut down and then her kidneys, she was flown from Bend, OR to Portland, OR. Shortly after her arrival Susana was started and dialysis and has been on a ventilator to help with her breathing. Susana has been diagnosed with an Autoimmune disease called HLH. HLH is very rare and life threatening. HLH is not a single disease. HLH is a group of rare disorders of the immune system. The immune system is the part of the body that fights infections. People with HLH become very ill, because the immune system doesn’t work properly. HLH can be caused by infections. Over time, the immune cells grow out of control. They damage many parts of the body, including the liver, spleen, bone marrow and brain. The first step is generally suppressing the overactive immune system. This is often done using a combination of steroids and chemotherapy, with the goal of putting the disease in remission. Because of its severity HLH can only be cured with a bone marrow transplant.

As you can tell Susana, my brother and their 3 kids have a long road ahead of them. Not only for Susana and the prayers for her recovery, but their medical cost, bills without income and the care of their children. As a family we are doing everything we can to provide the best that we can for them, but sometimes asking for help is the best option. Nathan, Susana and their kids would give anything they could for other people and I know that they would appreciate even the smallest amounts. I know that in this time they would hug each and everyone of you for helping with whatever you possibly can. Susana is so young, the mother of 3 beautiful children and the love of my brothers life. Again, we all thank you so much for your prayers while they go through this unimaginable time.
https://rarediseases.info.nih.gov/diseases/6589/hemophagocytic-lymphohistiocytosis
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  • Don Winbolt family 
    • $50 
    • 44 mos
  • Lori Aguilar 
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  • fred h 
    • $150 
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  • Beverly Hickey 
    • $50 
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  • Kathleen Lloyd 
    • $250 
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See all

Organizer and beneficiary

Stephanie Barnett 
Organizer
Eugene, OR
Nathan Barnett 
Beneficiary
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