Fight for Paisley

25263098_1546916361436182_r.jpegPaisley's service will be held Friday January 11th 2017, at the Cremation Society of Duluth MN on Grand Ave in Duluth. Service will be held at 10 am with 1 hour visitation prior to the service.

Updated story 1-7-19

Paisley Ann Marczak aka “Monkey” and “Momma’s Baby Girl” gained her heavenly angel wings on January 5th 2019 surrounded by many that loved her so incredibly much. Sam and Jon provided her with the best life possible, giving her experiences and adventures that they will hold with them for their entire lives. Her spirit will be carried on through her Baby Brother Hunter. In the upcoming days arrangements will be made to celebrate her amazing life and those details will be shared as soon as they are finalized. As we prepare for the days ahead, we are asking for help in giving her the send off she deserves. If you are not able to help financially we need your prayers to help carry us through the months ahead.This is Paisley Ann Marczak, born on November 2nd 2017. She was born 5 weeks early (original due date was December 11th). Paisley was welcomed into this world by her Mommy and Daddy, Samantha and Jon.                              

Updated story 1-6-19 



During Sam’s pregnancy, they received news that no first time parent (or any parent for that matter) wants to hear. Baby would have complications, to what extent, no one knew. She was diagnosed in utero with HPE (Holoprosencephaly), which is an abnormality of brain development. They could see that Paisley’s brain did not divide into right and left hemispheres. After this diagnosis, the pregnancy was left with a lot of uncertainty and extra cost.

Our little warrior princess fought her way into the world with a loud and forceful cry. Prior to her birth, they weren’t sure if she would be able to breath on her own. She arrived crying (the best sound in the world), announcing to the world that she is a fighter and that she wants to live.

In addition to HPE, Paisley has a bilateral cleft lip, cleft pallet and is missing a portion of her nose, which can all be repaired. The night she was born, an MRI helped the doctor’s understand the severity of Paisley’s HPE. Paisley has semi lobar HPE, the second most severe type of the four types of HPE.

Samantha and Jon remain excited for their little family. Miss Paisley has been in the NICU to provide her the greatest chance at life. Paisley has numerous needs and many future appointments, as a result Sam will not be able to return to work. Jon returned to work four days after her birth. They are both trying their best to advocate and provide what their beautiful daughter needs with the resources that they have available.

Paisley is responding to both light and sound. She loves the sound of Mommy and Daddy’s voices; she happily turns towards them when they speak. She is being fed by a feeding tube and is starting to get the hang of using a bottle. She is able to eat about an ounce of formula every few hours. She spent an evening under blue lights for slight jaundice, but is now doing fine.

Paisley’s brain abnormality has resulted in some hormone deficiencies that help regulate her urine output. True to form, she is a fighter and is responding well to the medications designed to help with this problem. This medication will need to be continued. Paisley has seizures and has medication to help control them.

There is a long road ahead for their family. We asking for prayers, as well as some help to lighten the financial burden. Sam and Jon are already feeling the wolf at the door because Sam was put on bed rest for the last month of her pregnancy. Now, the financial burden has increased as they help their little fighter with her battles. If you are not able to help financially, we just ask that you add Samantha, Jon and Paisley to your prayers; the power of prayer has already helped in amazing ways.

Donations (0)

  • Melissa Beier 
    • $50 
    • 9 mos
  • Marc Frumkin 
    • $25 
    • 9 mos
  • Tonya DuRoche 
    • $50 
    • 9 mos
  • Jason Roche 
    • $20 
    • 9 mos
  • Anonymous 
    • $25 
    • 9 mos

Organizer 

Marczak Jon 
Organizer
Duluth, MN
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