Felicity's Freedom

Felicity Brown is a gorgeous, fun loving 9 year old girl born and raised in Katherine, Northern Territory.  Felicity has a wonderful mum, Claire, Dad, Noel and brother Will.  When Felicity was around 3 years old, she was diagnosed with Spinal Muscular Atrophy Type 2 which is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease. The disease not only affects the muscles you see like your arms and legs, but all the muscles you can’t see, like your breathing, coughing and swallowing and dramatically reduces life expectancy.  There are various types of SMA, however Felicity has Type 2, which has prevented her from ever being able to walk, dance and run like every little girl should get the chance to do.  Recently, Claire and Noel had the opportunity to try a sit to stand motorized wheelchair which gave Felicity some new found freedom. For example, it allowed her to be able to stand up and chop and cook dinner with her mum.  Something you and I might take for granted.  The Wheelchair however, comes with a massive price tag and is not covered by the NDIS.  The chair is a Permobil F5 Corpus VS sit to stand wheelchair and is $46,000! It seems absolutely heartbreaking and unfair that something that would be so life changing for Felicity is so expensive.  Felicity turns 10 in June.  Can you imagine how awesome it would be to gift to her one of these for her birthday? If we all band together, I'm hoping that we can raise some funds for Noel and Claire, to help them in their mission to give Felicity this opportunity.  Any small amount will help, and if you are unable to donate, simply share the link with your networks, and hopefully we can make a difference to this gorgeous girl's life!