ALS has no cure and very few treatment options. It is a very serious disease that involves increased nerve damage in the brain and spinal cord which leads to decrease in motor control over the muscles of the body. It is ultimately fatal. To further add insult to injury, Felicity's particular flavor of ALS has come with a quickly progressing form of dementia.
In the past year since her family first began to notice small signs that had us concerned that she had suffered a minor stroke, Felicity has gone from an energetic 57-year-old who wouldn't hesitate to help a stranger or bring home a stray dog and who provided loving care to her severely disabled son, to someone who struggles with some of the most basic motor skills and cannot stand unassisted. The transformation has been heartbreaking.
(Ty, Felicity's youngest son, has the rare genetic condition KBG Syndrome)
A variety of modifications and medical equipment will be needed as Felicity’s condition declines in order to help her maintain some quality of life. Funds donated to this cause will go towards efforts and equipment to aid in maintaining Felicity's mobility and independence (such as railing and ramps, travel to ALS clinics, physical therapy, and a much-needed means to transport her wheelchair). Most immediately, Felicity needs assistance in order to modify her too-small bathroom to accommodate her wheelchair and the caregivers who assist with bathing and personal care.
Please open your heart and aid someone who has given selflessly her whole life to make the lives of others better and asked nothing in return.
Many thanks and blessings,
(her eldest daughter, on behalf of her other 11 children)
- Gloria Saylors
- Amanda & Chris Schaefer
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