So as most of you know my sister has been battling stage 4 lung cancer the last year and before that breast cancer amongst other things from a rare genetic disorder Li Fraumeni Syndrome that she was born with that keeps on giving her these terrible diseases. She has gone through so many surgeries and treatments the last 2 years. She finished intravenous chemo last summer and has been taking a daily chemo pill since then. We have had some ups and downs the entire year with her health. The last week and a half she’s been very sick due to some bacterial and viral infections she has not been feeling well at all. She’s been having trouble walking, swallowing, breathing and in the most severe pain she’s ever experienced. We found out last week as well her tumor markers were elevated and she needed a pet scan again. The insurance company denied it and said it “wasn’t medically necessary” so on Thursday she had to pay 2100 dollars out of pocket to get the scan because she knew something was wrong. Thank god she did because they found a mass on her l5 that’s has doubled in size the last 5 months.. she’s had this spot there and has had issues with pain and her legs and when she went 5 months ago and had other scans and saw multiple doctors they chalked it up to being a “stress fracture” when clearly that’s not the case. With her genetic disorder they should have biopsied it just like the other times they told her it was nothing but ended up being cancer. She has been screwed over terribly by our health care in this country time and time again. She has had non stop scans and appointments and this week is no different yesterday she had a brain mri and tomorrow she will have a lumbar mri and they will be doing a bone biopsy this week to see exactly what cancer we are dealing with they think more then likely it’s metastasis from her lungs. From what we know now she will be doing cyberknife radiation which she’s never had before and an even more aggressive chemo with a lot more side affects then last time. And on top of this she is already sick. She’s lost weight and is just genuinely doing unwell. We are going to look into a home health aid as well but don’t know if insurance will cover that let alone these new treatments. We don’t have many people who can come and help her but those who are also have children and work etc just like her you all know she is a amazing mother to a 11 year old little boy he’s not aware of the extent of anything yet. He just started middle school which is already a huge change. We just need all the help we can get to make sure the two of them can get through this. She is a warrior and hasn’t given up and we can’t give up on them either she has so much more life to live. No one deserves this. Let alone her.