Hello, my name is Finley and I’m 6 years old and I have a question for you………….. have you heard of a very rare life limiting genetic brain disorder called SCN2A (Sodium Channel brain disorder)? If you have, you must know one of the 70 known children in the world that has this disorder. If you are thinking ‘Never heard of it’ then let me introduce you to one of those children……………. Me, Finley.
Unfortunately, this disorder has smothered my brain and will not let it work like other children’s brai
￼ns. I can’t walk, I can’t talk, I can’t sit up, I can’t eat, I can’t drink, it’s made my eyesight very poorly, It has given me uncontrollable epilepsy, makes me spend a lot of time with the doctors and nurses at the hospital and I need full time care. But the thing that I find the hardest of all is not being able to tell my Mummy how much I love her.
My Mummy and Daddy have had to make a lot of sacrifices because of me and my silly brain disorder, but amazingly still find it in themselves to give me the best they possibly can. The trouble is that all the stuff that I need costs a lot of pennies.
If you would like to support me by sharing my page, arranging a fundraiser or you can donate using the link below. http://www.gofundme.com/fdj050
Thank you for taking the time to read this.