Time Is Of The Essence, Our Faith!!

32212978_153497950178527_r.jpeg32212978_1534979549369694_r.jpeg32212978_1534979631713672_r.jpeg32212978_1534978003801496_r.jpegWe do not know how long we have. 
My family and I our reaching out for Our amazing 4year old daughter, Faith was diagnosed with Neuroblastoma high risk stage 4 cancer. She has been our amazing little fighter. , Brain an spinal surgery, chemotherapy, stem cell collection (harvest),  feeding tube, chemotherapy with antibodies,  radiation  are just of couple of the battles she has had to experienced. These procedures and treatments, nothing has been successful. The location and size of her tumor has prevented any kind of surgery to be perform. The biggest tumor is located in front of her abdomen wrapping around organs back to her spine. Since we first started treatment in November 2017 , her tumor has grown. Now we are told they can no longer are going to treat her. They are going to make her as comfortable as they possibly can. With the question as, parents " how long?" As parents we don't want to believe it.  We watch her every day full of bubbly energy. Her hair is growing back with the help of vitamin D. She is gaining weight , she looks so good, and spirits are inspiring. It's been a long time since we have seen her like this.  I think that's why it makes it so hard to believe. We are being told that our little angel isn't going to make it much longer. She has an older brother and a new baby sister , Faith loves and adores the both of them greatly. My fiance and I both stopped working when Faith was diagnosed . My fiance started working again , then we were given this news . Make a wish got in Touch with us and made Faith's wish come true. To meet the little mermaid and the other princesses in Disneyland L.A.. FAITH, her brother and baby sister  had a blast,  we all did. We don't know a time frame ,they aren't sure. The doctors and our hope was radiation therapy would pro-long Faiths life up to 10 months. After recent scan readings we found out she did not respond to the radiation as hoped.  Faith has been greatly amazing through ALL this. She is a fighter in ways I could never possibly be. She has learned so much and loves being hands on with the doctors, nurses and as well at home taking yucky meds to flushing her tubies. It has definitely been a rollercoaster ride as the doc says and much more watching her go through all this . We still believe and hope for a miracle out there , somewhere for our baby girl. I started this fundraiser a few months ago and didnt finish with the hope of radiation therapy being successful. As parents we want to do all we can for our children. So many thoughts cross our minds, I stop myself because we don't see our lives with out our Faith. Thoughts of what if ? , though I can't accept it. I know this week will be a challenge for my family. Hospice comes in to introduce themselves and become a familiar face for our girl. We will start seeing them once a week  starting off.  Of course,  when needed. The following week we start our greiving counseling with a social worker from hospice. Yes , early. We all are  having a difficult time, very emotional with things at the moment.  As a family of 5 struggling to wrap our minds around what is going on in our own ways. I'm probably the worse, that's why I have reached out for the help. Im reaching out because if this goes as they say , we are unable to afford costs after she is no longer here with us.  My fiance and I are currently unemployed wanting to spend every second  during the rest of the time we have with her.  My second reasoning for reaching out so last minute is because my partner and I are engaged. I want and need our daughter apart , involved , her smile and funny little personality to share  this great moment all together. Words could never express our appreciation of your caring kindness. She is our world, it means the world to us all! Thank you from all of our hearts.
  • Diane Ongman 
    • $100 
    • 35 mos
  • Michelle Pine 
    • $100 
    • 35 mos
  • Beth Wilke  
    • $25 
    • 35 mos
  • Polly Ganong-Strahan 
    • $50 
    • 35 mos
  • Kathryn Johnson  
    • $25 
    • 35 mos
See all

Organizer

Ashley Kiesling 
Organizer
Klamath Falls, OR
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