Fabiola's Pediatric Heart Condition Fund
Today, we reach out to friends, family, and all those who have crossed our paths, near and far, to humbly ask for your generosity and your prayers, in order to help heal Fabiola’s deteriorating heart. Most of you know her as Fabi, who turned 14 in the blink of an eye, under the love and care of her parents, sister and extended family. She has been experiencing painful and debilitating physical ailments associated with a recently diagnosed rare heart and lung condition that requires expert care and treatment. All treatments and procedures Fabi has so bravely undergone have proven to have an emotional and physical toll for her. As her family, we have suffered alongside her, while trying to re-assure her that doctors will be able to provide a cure, and that she will soon feel better. Unfortunately, that has not been the case, as all treatments have fallen short of providing a cure, and her health continues deteriorating. For us, as parents and family members, having to hear there are limited procedures left to allow her a fighting chance is discouraging, particularly when we were informed of the minimum costs to even start the procedures. No parent wants to ever have to endure their child’s suffering, particularly as it relates to their health, and we desperately seek to provide Fabi an opportunity to be cured, and to continue to grow and develop in hope and health.
Pediatric cardiovascular doctors in Puerto Rico have diagnosed three conflicting conditions that can no longer be treated in Puerto Rico, where she currently resides. Pulmonary Arterial Hypertension or PHTN forces her heart to work twice as hard, causing constant fatigue and poor tolerance to physical activities. Multiple Pulmonary Arterial Stenoses that are strictures on the lungs vessels limiting blood flow and proper oxygenation. The third condition Atrial Septal Defect (ASD), is an opening between her atriums. All of this means that her heart is pumping blood against a greater resistance and part of it, poorly oxygenated blood flows back into her body trough the ASD causing poor tissue saturation. This increase load has caused right ventricle hypertrophy. This significantly limits the ability of a child to be a child.
Blood labs, genetic and congenital panels, EKG, Echocardiogram, X-Rays, CT Scan are a few of the many studies she has undergone besides invasive treatment of catheterizations with angioplasties and a stent placement.
The Boston Children’s Hospital has agreed to take her case with costs upwards of $143,190.39 that in addition to lodge, long-term care (we have been told she is going to require multiple interventions) and the psychological impact on the family. Even with health insurance coverage (partly covered) the sum is too large for the family to bear and that is why we are requesting assistance. The visit to the Boston Children’s Hospital referenced in the amount above is just the first of many interventions, which is why our goal of $175,000.00 plans to encumber future costs that may be not be accounted for now. Reports will be provided along the way to our donors to secure trust and to show
how your help is helping Fabi get better.
If you have read this far, we pray for you, and we thank you, for taking an interest in our beloved Fabi’s health. We kindly request any donation, no matter how small, in order to, literally, heal Fabi’s heart, and, figuratively, fill once again our hearts with hope.