Help Tan Walk , Health and Expenses

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Help Tan Walk , Health and Expenses

 16 mths ago l was diagnosed with a Rare Autoimmune Disease.  C.I.D.P an off set disease from GillianBarre.  A Chronic Inflammatory Demyelinating Polyneuroathy that leaves patient's with debilitating disability that can also cause patient's the loss of mobility.  A Neurological Disease that Specialist's treat with IVIG infusion of Human Plasma and Chemotherapy.  Plasma Exchange and Steriods . Nerve Conducting studies show deterioration of perineal nerves.  Treatment different in each patient.  Patients are left Mentally Physically and Emotionally fighting a disease that basically starts from a bacteria eating away from the inside . Not visble to the eye many fighting this disease struggle ,  Its debilitating to the brain,  the motor responce is delayed . Patient's  are in  constant pain , Numbness and Sensory Loss make it difficult to complete normal daily tasks as simole as showering , dressing and eating .  Chronic inflammatory demyelinating polyneuropathy (CIDP) is an acquired immune-mediated inflammatory disorder of the peripheral nervous system. The disorder is sometimes called chronic relapsing polyneuropathy (CRP) or chronic inflammatory demyelinating polyradiculoneuropathy (because it involves the nerve roots). There is no cure however a Neurological and Oncology team alongside a Kidney Transplant Specialist team are working together whilst l currently undergo Chemotherapy, IVIG " Human Plasma " Steriods , with future Plasma Exchange and Stem Cell and Bone Marrow Transplant . For now l am unable to walk and have possibly a permanent disability.

Organizer

Tania Drummo d
Organizer
Keilor Park, VIC
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