As co-workers turned friends, we want to be able to help Lauri, Jenna, and the Benson family out with costs associated with a surgery coming up. Jenna was born with Congenital Central Hypoventilation Syndrome (CCHS). Jenna has been vent-dependent since birth. Jenna is now 15 years old and looking for more ways to become more independent. In July, the Benson family will be traveling to Atlanta to go through evaluations to see if she is a candidate for a phrenic nerve pacer. This would allow Jenna to be more independent with breathing and keep her healthier. After she is determined to be a candidate, the surgery will follow. Jenna, at 15, wants to be more independent, stay up late with friends, go to the mall without a caregiver, etc., and this gives her that opportunity to be a normal teen. What a huge thing to be able to allow her to do these things!
We are hoping to raise money towards travel expenses for the Benson family as they make two trips to Atlanta this summer/fall. Between hotel, food, gas, and someone else to travel with them, this would help them not have to worry about money while dealing with the evaluations and hospital stays.
Organizer and beneficiary
Brittany Hendricks
Organizer
Lincoln, NE
Lauri Benson
Beneficiary