Extremely sick, Doctors don't know why,Need help

Hi my name is Cheyenne and I have been extremely sick now for over 2 years with no diagnosis in sight. No diagnosis means no disability and I'm too sick to work and at my wit's end with the excruciating suffering I've had to deal with Non-Stop. I didnt know how else to get my story out there because I believe I'm dealing with a rare disease and these doctors are at a loss and I can feel this is dangerous and I'm incurring permanent damage the longer this goes on. Financial help would be wonderful but if anyone has information or recognizes my symptoms and can give me some information, that would be priceless.

Asking for financial help from people is not something I'm comfortable doing but I'm going to be homeless soon if the doctors can't figure out what is killing me. It's been going on so long and the suffering has been so severe that I'm mentally at my wit's end. It's gotten to the point where I am terrified of my body and the fear is paralyzing most of the time. Waiting for a diagnosis for so long while constantly suffering has pretty much left me with very little faith.

About 2 years ago I started vomiting on a daily basis to the point where I lost over a hundred pounds in 4 months and lost my job because they don't want you throwing up at work around clients. And honestly I couldn't be a good worker anymore which took away all my Independence and Financial Security.

The vomiting eventually transformed into severe abdominal pain and with nearly 50 visits to the hospital, each time they told me a different organ in my abdomen was enlarged and they didn't know why and sent me home like always with no answers, just pain and fear. At one point or another every organ in my body was affected including my brain, heart and lungs, but the main area was the organs in my abdomen.

They didn't really believe how serious my situation was until my spleen had become enlarged which is something that is extremely rare with only 2% of the population ever experiencing spleen enlargement. From what I have learned, anytime you're spleen is enlarged, it's a very dangerous situation and is always due to an underlying Factor such as a blood disease.

I was assigned a team of about six doctors and for the first time in a long time I had hope that they would figure out what was happening to me and I could get some quality of life back, but I was wrong. One by one each doctor told me they just couldn't figure it out. I felt abandoned and never so alone in my life.

My last scan now shows my bile duct is enlarged in addition to the endoscopy that showed that everything inside that it could see was also enlarged. I can rarely eat because of the bile duct and the constant nausea and pain.

I've been too sick to work and am terrified that I will soon be homeless because my husband cannot support the both of us and our living expenses.

Unfortunately, both my parents have passed and I have no siblings so I really have no family that can help me out in my time of need.

It is extremely embarrassing for me to do a GoFundMe because of my health but I don't know what else to do anymore and I am so afraid of how much worse it can get because I don't know how much more pain I can handle and I know my body is suffering permanent damage. I've had fainting Spells, seizures, crazy bruising at times, tons of abdominal infections, insanely high heart rate, trouble with breathing randomly.

We are close to being homeless even though my husband is working 6 days a week even looking for a second job to try and help us while I wait and wait on a diagnosis that I don't even know if it's ever going to come.

I just turned 44 and I can't imagine going through this any longer. I used to be a very positive person but I'm losing hope quickly.

I would do anything to have my life back and be able to work again because asking for handouts is not something I enjoy doing. I was raised to take care of myself and when your health goes like mine has you have no control anymore.

We only have one car now and it is so close to completely breaking down and we have hardly any food in the house and I feel like a failure as a wife. I know it's not my fault that I'm sick, but you can't help feeling guilty. My husband doesn't deserve this and my son doesn't deserve the stress of wondering if his mom is going to live or die.

If I'm fortunate enough to receive any donations, they will be used for basic living expenses such as food, fixing our car so my husband can get to work, and help with the medical expenses. I will soon be without medical insurance and that is extremely costly as well.

What I need is time, time for the doctors to hopefully finally run the right test to see why this is happening to me and hopefully there's a way to fix it. I've never been so scared.

I'm embarrassed to admit that there have been times where I've had Suicidal Thoughts thinking that my husband and son would be better off without having to deal with a sick wife and mom.

At this point, even a devastating diagnosis would be a relief so at least I know what I'm dealing with and I can accept it. I would do anything to have my life back.

I'm trying to stay as positive as I can but I'd be lying if I said I wasn't losing hope at this point.

People work very hard for their money so asking for donations in my situation is not an easy thing for me to do. I'm not the first person to get sick and I'm certainly not going to be the last but just to know what's wrong with me would make all the difference in the world. But it's clearly going to take more time. Never in a million years did I think I would be dealing with this for years with no answers.

If anyone is in a position to help, it would be appreciated more than you can even imagine but I certainly understand that money is not easy to come by and everybody works hard for what they have.

If anyone out there recognizes the symptoms I've been dealing with and can help point me in the right direction so I can better advocate for myself in getting the right diagnosis , that would be better than getting all the money in the world.

Any help whether Financial or information on what disease this could be, I would be eternally grateful. I believe it's probably an autoimmune disease and something that is somewhat rare. I know there has to be someone out there that knows or at least has a good idea of what is happening to me. I just hope I can reach that person.

Sincerely,

Cheyenne