I go by Nikki. Im a single mama with a rare genetic disorder called 'Loey Dietz Syndrome Type 4-specifically w/ a 146k deletion in my TGFBeta2 chromosome' (it's a genetic disorder + connective tissue disorder, mostly affecting the aortic root of the heart causing it to dissect which leads to aneurysms along with many other complications such as neurological as well as primary effects on my vascular and skeletal systems, some gastro issues, blurred vision/extreme fatigue and over heating of my body and brain) which has taken over my life and body along with effecting the mental of my daughter. We have been fighting this since 2017, two years prior our forever home was burned down and the man who did it is still free despite the year of evidence arson and I were able to find. Justice failed us. fast forward..

My medical insurance was dropped like a fly this February of 2025, every month since has been harder and harder. I have several specialty doctors appt & sedated MRIs and medications needed throughout the year to simply just monitor and help extend my expiration date and allow me to be here a little longer with my kids. Yes I do work but it's hardly covers our basics, especially at times when I end up sick and in the hospital. Our only vehicle was targeted and a fire was created. Thankfully we were able to get her clean enough for me to use as a simple to work and home van. I am thankful and I pray to God at every exit thanking him for getting me closer and closer to our destination both physically and spiritually, it does feel as tho I'm drowning at times. The stress only making me feel more sick. The hospital scares me, it's a sensory overload, all the beeping, the code blues and so many doctors. I have applied for SSI and am considered priority due to my condition leading to death. But even then it will take 6+ months and it seems as tho time is limited. I'm typing this with years of tears in my eyes, a shaky body and the strength given to me by God! We live in a month to month rental apt. Idk how to cover bills and my medical health. If my health isn't good then I can't work. If I don't work then we won't make it. Please we ask for help with anything possible for my daughters and I. Our story is so much more Grand than I can put into words. Please if anything just keep us in your prayers. Please father God please I beg you all. I was told I should have made this long ago but i didn't out of fear of rejection. I rebuke the devil, and he will not win!

Lord hear our cries please father God! Answer our prayers! We claim it Father GOD by your WILL not mine.

Thank you ALL for taking time to read this. Thank you for your prayers. God bless us ALL.