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Update on Brinley's Journey Against Sanfilippo Syndrome
Dear Wonderful Supporters,
We are deeply touched by the incredible outpouring of love and support for Brinley, our little girl who is battling Sanfilippo Syndrome. Your unwavering generosity has been a beacon of hope during this challenging time. We wanted to share an important update with you all.
As Brinley's health journey continues, her condition has unfortunately taken a more difficult turn. The toll of Sanfilippo Syndrome on her body has increased. With heavy hearts, we've learned that there is a potential clinical trials that could make a difference in her quality of life. However, this treatment is not available locally, as of yet and this is where we need your support more than ever.
The road ahead is not only emotionally challenging but also financially strenuous. The cost of travel, medical expenses, missed work, and the day-to-day bills. Your continued contributions are a lifeline that can help us navigate these rough waters. Your support means the world to us, and we are forever grateful for the kindness and compassion you've shown.
Please, if you can, share our GoFundMe page with your friends, family, and social networks.
Thank you,
Melissa
#teambrinley#teamsanfilippo#sanfilippofamily
Organizer
Melissa Vienneau
Organizer
Kitchener, ON