I would like to explain the story of baby jay on my friends behalf ! One of my closest friends was given the news no mother could imagine hearing, her sons life expectancy being 5-7 years old! Jay was diagnosed with something called cockayne syndrome. Cockayne syndrome is a rare and fatal autosomal recessive neurodegenerative disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight, eye disorders and premature aging. As you all could imagine the past years have been a roller coaster from hospital appointments to being admitted.. ups and downs that my poor friend Khadijah has had to deal with which all come with different costs. Jay is now permanatly living In Toronto's only hospice for children and families facing life-threatening illnesses. October 1st is baby jays birthday, we are all excited he has made it to his 6th birthday but with him getting older it also means she has to start planning baby jays funeral. I am asking for donations to help my friend Khadijah with Jays funeral costs so she can lay him to rest in the best way possible with no regrets due to money issues ! Thank you guys for listening.