Jacob’s Introduction

This is Jacob’s never-ending journey to health and healing. He was born special,

“a little too special,” as he says. Born with VACTERL Association, an acronym for:

V - Vertebrea (scoliosis)

A - Anal Artesian (colostomy bag)

C - Cardio (3 holes in heart, 1 patched, 1 stitched, 1 still present)

T/E - Tracheal esophagus (acid reflux, throwing up)

R - Renal (1 functioning kidney, other kidney is multicystic dysplastic)

L - Limbs (6 digits, polydactyl, extra thumb)

On top of VACTERL Association, Jacob also has been diagnosed with learning disabilities which include ADHD, Autism, and OCD. After undergoing over 20 surgeries since birth on his heart, back, intestinal tract, teeth, etc., Jacob lives with chronic pain, a lack of mobility, and physical limitations. Despite all of this, Jacob remains a incredibly influential light in the lives of those around him. He inspires positivity, kindness, and empathy in all those he meets. And, despite his struggles, his humour shines brightly through it all.

Current Supports

Jacob’s mom, who is struggling with an autoimmune disorder is currently unable to work and support Jacob in the ways she has in the past and wishes she could in the present.

The Help we are Seeking

We are seeking funding for Jacob’s medical needs, long distance medical travel, recovery stays, as well as housing upgrades. These housing upgrades would include amenities that foster safe and effective healing while ensuring his independence.

Upcoming Medical Surgeries

With the multitude of previous surgeries Jacob has undergone, doctors are continuously sending him for tests, scheduling specialist appointments, and preparing him for any potential future surgeries and appointments. Jacob’s current upcoming surgeries include a repair for his parastomal hernia bulge around his stoma and permanent spinal rods to repair his scoliosis. His most recent surgery involved removing a set of temporary spinal rods in January 2025. Doctors discovered that Jacob’s spine is still not able to support his body, therefore, another spinal repair surgery is required and more may be needed in the coming months and years as his body continues to grow and develop.

Thank you for your time and support.