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Everybody for Bella

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YOU CAN HELP REALIZE BELLA'S DREAM
SHE DESERVE WALK ONE DAY AND BE HAPPY!

Isabella is my beautiful, strong, smiley princess who is 2 years old. She was diagnosed with Larsen Syndrome (a rare genetic disorder with characteristic findings of ligamentous hyperlaxity, abnormal facial features, and multiple joint dislocations). She was born at 35 weeks by an emergency c section due to fetal distress. At birth she weighed 5 pounds 8oz, and had many severe malformations. She spent 5 months in the NICU and was released with a gastrostomy feeding tube, often called a G-tube. She was affected by dislocated hips and knees, foot issues, hearing loss, hyper-mobility, dislocated vertebrae in her neck, respiratory problems, a submucous cleft palate, feeding issues, and Larsen-like facial features. She also  has Cyclic neutropenia ( a rare blood disorder characterized by recurrent episodes of abnormally low levels of neutrophils (a type of white blood cell ) in the body.). She is originally from Brazil. Isabella's mom and her is currently staying  at Quantum House at St. Mary’s Hospital, in Florida waiting for her first surgery.

She also is being treated with a very expensive medication for her blood disorder, cyclic neutropenia. As we all know, medical expenses is extremely costly. This fundraiser has been established to help ease the burden on the family so they can focus on her healing. Please feel free to share this fundraising with your families and friends. Any donation that you are able to make will greatly bless this family. On behalf of Isabella and her family, we appreciate the outpouring of love, prayers and support that will be needed over the coming days and months. God bless you!
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YouTube like of her video : https://youtu.be/KO8FWWloAIQ
Z.e.l.l.e: [email redacted]
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    Organizer

    Dayane Gomes
    Organizer
    West Palm Beach, FL

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