On September 25, 2017 a new team will again embark on the adventure of a lifetime -
Everest to End Duchenne 2017!
DMD is a terminal and progressive muscle wasting illness, for which there is currently no cure or even an effective treatment that can prolong life.
In 2015, we carried the names of over 700 boys printed on a flag to base camp, and once there, read every name into the wind, carrying a message of hope for a cure over the rooftop of the world.
On that first trek, I realized that Everest to End Duchenne had become a unique and inspiring campaign, not only for the families of the boys we "carried" to base camp, but for the hundreds of friends, family and strangers who followed our journey through social media.
The ETED team felt incredibly supported, both financially (with donations), and emotionally, as we all struggled with altitude sickness, muscle aches, head aches and nausea periodically on our trek. But these ailments were short-lived, and nothing compared to what our children with Duchenne suffer from every day.
As soon as we completed ETED 2015, I began planning for the 2017 trek. This was a fundraiser that spoke to people and helped spread awareness about Duchenne all over the world - so my hope is to make it bigger and better this time! Our team goal is $100,000 towards medical research!
Stay tuned for updates, blog posts, photos, and info on Everest to End Duchenne 2017. Visit the ETED website here Everest to End Duchenne. Be sure to view the trailer for the documentary we made in 2015, "Into the Wind."
And please help me reach my personal goal of $10,000 if you are so moved. Every dollar helps move us closer to saving the life of not only my baby boy, Gus....... but of EVERY person with Duchenne!
Thank you for being part of the journey to a cure!
- Jen Christensen
- Amy Jenkins
- Lisa Carey
- Ron Cheney
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