Evangeline’s VOGM Journey

Evangeline’s VOGM Journey

As many of you already know, our sweet Evangeline was diagnosed with VOGM (vein of Galen malformation), a very rare and serious abnormality in the arrangement of blood vessels in the brain. Below is a message my sister shared explaining this further.

On Wednesday, December 19th, Evangeline will undergo her first surgery at Mount Sinai in NYC, which is one of the hospitals in the country that specializes in VOGM. Eve’s doctor and team have already informed Nate and Heather that more surgeries and follow-ups in NYC will be needed.

I know anyone who knows Heather and Nate would agree with me that they are two of the most selfless, caring people you will ever meet in a lifetime. Always there for anyone who needs them, no questions asked, just simply there. I have watched them both since the first night Eve went into the hospital with seizures on 11/5. Their world has been turned upside down. Through their sadness and fear, I have also seen the “grateful” tears for the outpouring support and love they have received already at the start of this tough journey.

I am setting up this GoFundMe account in hopes to relieve some of the financial strain that will be placed upon them from medical expenses, travel expenses, and to help them maintain household expenses during this time of need and absence from work so that all of their focus can be on Eve and navigating her through this journey. Thank you so much and love to all ❤️