Evan Groves has Epidermolysis Bullosa (EB), a group of rare genetic conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction and are very painful. EB is a terrible disease and currently there is no cure. This young man is in terrible pain daily. He has a trachea and has lost sight in one of his eyes. Evan and his family live in Covington, Virginia.
Evan has a hard time getting in and out of the bathtub, because of the condition of his feet and he can’t sit in the tub with blisters over his body. Our goal is to raise $48,000 to add a 12’ x 16’ addition to Evan’s bedroom, which will have a Americans with Disabilities Act compliant bathroom for his use. The bathroom will include a toilet his size, a walk-in shower, which can accommodate a wheelchair, closet, medical storage cabinet and a medical grade table to assist his mother in changing his dressings. It takes between 2 to 3 hours to properly bathe and change his dressings. Also, a new floor will be installed in his current bedroom, along with a mini heat pump just for Evan’s bedroom/bathroom, as Evan is very susceptible to temperature. Donations received prior have been $13,000, so we are trying to raise the remaining $35,000.
Evan is my son Parker's best friend and we wanted to do something to help Evan and his family have better days. His family has never asked for anything, but we wanted to do provide something to ease the struggles in every day activities many of us take for granted. This young man has endured much suffering and if we can ease some by providing a better surrounding for him, then it is the least we can do.
Please share this post with all your Facebook friends, your church, organizations, everyone you can think of. Any donation you can make to help in providing surroundings ease his struggle with daily activities of life, will be appreciated.
You can follow Evan on Facebook at “Evan’s Journey” by his mother Christina Rena McLaughlin. (Search Evan's Journey Christina Rena McLaughlin)
Click on the following links to learn more about Evan:
Photo above credit Addison Hinkle
- Amanda Castello
- malcolm vosburgh
- Carlita Britten