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Eva was born on Friday, February 16, to her parents, Jack & Carissa Rumer.
One of her birth screenings came back as positive for a metabolic marker, which required additional blood tests at Blank Children's Hospital followed by an unexpected admittance to Blank and an eventual transfer to University of Iowa Hospitals.
Eva's birth screening showed she tested positive for Tyrosinemia Type 1. According to rarediseases.org, "Tyrosinemia type I is a rare autosomal recessive genetic metabolic disorder characterized by lack of the enzyme fumarylacetoacetate hydrolase (FAH), which is needed for the final break down of the amino acid tyrosine." In short, it affects how her body breaks down proteins and if not managed well, can cause toxin build-up in her little body which can lead to other serious issues.
While being monitored for Tyrosinemia, Eva was not using her left arm as much as her right and at some point, they could tell her arm was causing her pain. After several days of unknowns and lots of tests, it was discovered that she had MSSA bacteria in her blood and ostemylitis in her shoulder and humerus, which was the cause of her lack of arm movement and pain. Several abscesses were found in her arm and around her brachial plexus. She underwent surgery Thursday night to remove the abscesses. Surgery went very well.
Because of the MSSA bacteria, she must undergo an extended period of IV antibiotics. At this time, it is expected that she will be hospitalized for 4-6 weeks.
This extended hospitalization comes with a lot of unexpected expenses, and we are utilizing any funds raised to help fill in the gap for Jack & Carissa during this time - food, lodging, gas, and other essential needs. Additionally, funds raised will go toward helping with Eva's medication and medical expenses.

