Ethyn Tavas Beyer Memorial

Updated 05/20/2020~ I am going to be keeping my fundraiser up through Sunday seeing that I was put into Facebook Jail and not able to post on my own timeline for 2 days and in my groups for 6 days. I understand that my posts will be "put lower on the feeds" for a total of 29 days, so who knows where this will end up. I suppose I am a horrible person for not understanding why someone hacked my account to get to my angel babies memorial funds! So, I pay the price while it is okay for someone to take over my identity!  Anyway, please feel free to donate, say prayers and sharing especially will be helpful if you are inclined to do so! Again, I Thank Everyone for their support during this horrific difficult time! 

My name is Victoria Lynn Driessen Beyer. Ethyn Tavas Beyer was a freshman at Neenah High School and a Go Fund Me has been set up for him
All monies will go into a memorial fund, helping out with incurred bills and time off of work. I myself am self-employed, so I don't have any paid time off. Please feel free to donate if you wish, or prayers work beautifully as well. Below is the shortened story of my boy's journey with Hereditary Spherocytosis.

I feel compelled to tell my son's story, and for now, I will keep it as short as I can. Ethyn Tavas was born on 10/19/2006. He was also born with HS; though my husband had a mild form, this was not to be for our boy. By the time he was 3 1/2 years old, he had over 50 blood transfusions, and it was time to take his spleen out. It was too large, and we were going every week for transfusions. So, though this stopped the need for transfusions, the tradeoff was a compromised immune system. We had a WONDERFUL Hematologist and PCP. I was on my own, learning all about keeping Ethyn as safe as I could while letting him live his life as best as he could. Since his spleen removal, he took Penicillin 2x/day without fail. Colds and illnesses took a little longer for him to recover from, but that is just par for the course with a kid without a spleen. Was I a nut, yes, but I learned to deal with it as best I could. The one thing that stuck in my head was our Hematologist telling us to never feel bad going to the ER if his fever would not subside because the last thing he needed to fight was sepsis. On March 30th, 2015, Ethyn developed Bacterial Meningitis. We almost lost him, he lost his hearing, but it did come back partially. He developed a whole host of issues that we slowly worked through, but he triumphed beautifully. He was your average teenager, just did not have the stamina his friends had to keep up running around, but that really did not affect him that much. On Wednesday, March 30th, at 9:45 pm, Ethyn told me he felt he was getting a fever, so I checked him, and he was 99.3. However, as an RN and knowing he was much higher than that, I took it rectally, and it was really 102.4. I did not panic just yet, and I gave him Tylenol and started with ice packs and cold rags on his forehead. At some point around midnight or so, he started to vomit and had diarrhea. I thought for sure Influenza, but when I rechecked his temperature again rectally, he was at 104.7. I thought surely this had to be wrong, but it was not. For now, I am just going to fast forward to 11:53 am, Ethyn passed away from sepsis. He was 15 1/2 years old. On March 31st, 2022, I lost my baby to the very thing that frightened me the most. I am not trying to scare anybody, but this is the reality of someone with HS. I read these stories and questions scared parents and adults have, and my heart literally breaks. Always err on the side of caution and NEVER apologize for it. I am NOT looking for sympathy; I just wanted to tell my angel's story.