This spring started out like any other for adventurous Ethan Craig of Apex, North Carolina. He had just turned 3 in February, complete with a big Mickey Mouse Clubhouse party surrounded by his family, including his dad, Mark, and his mom Amy Ashe Craig, originally from Belmont. He was enjoying school and showing the ropes to his little brother, Tanner.
That changed in early March. His dad dropped him to daycare like every other day, but by afternoon was picking him up after a call that Ethan was having trouble urinating. The ER tested Ethan for a likely urinary tract infection, which was negative. An ultrasound revealed something far worse – a massive tumor. He was transferred to UNC Children’s Hospital in Chapel Hill where, days later, he was diagnosed with cancer: stage 3 rhabdomyosarcoma (RMS).
RMS accounts for only 3 percent of childhood cancers; 70 percent of RMS cases affect children ages 1 to 5, just like Ethan.
RMS usually begins in the muscle, and, in Ethan’s case, started in the prostate muscle before wrapping around the urethra. An aggressive course of chemotherapy was started immediately after diagnosis, and Ethan has been responding well to treatment so far. But it is a very long road!
Ethan’s course of treatment is scheduled to last well into January 2018. After this first set of weekly, and sometimes daily, chemotherapy, Ethan and his family will travel to New Jersey this month (June 2017) for six or seven weeks of proton radiation therapy. We are very blessed that Ethan’s case has been accepted for this type of treatment, which focuses treatment directly to the tumor, while minimizing the damaging effects of radiation to other parts of his body.
This fund is set up to help defray the costs of Ethan’s ongoing medical expenses, his upcoming trip to New Jersey and medical needs that may arise in the coming year and beyond. Ethan and his family are beyond appreciative for anything you can give – and all that has already been given.
We also ask for your ongoing prayers. We’ve already experienced so many miracles, and hope for so many more.
Early on in the process of Ethan’s diagnosis, he was in the hospital, awake with intolerable pain one night. After hours and hours of struggle, Ethan sat up in bed, shook his fist and yelled, “I NEED MY SUPERPOWERS!”
That’s what this fund is all about – supporting Ethan’s superpowers every way possible so he can get back to being a carefree little boy.
Thank you so much from the bottom of our hearts!
To follow Ethan’s story, click here .
xoxo the Craig, Ashe and Moody families and all their extended family and friends ❤️❤️❤️
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