My 3 year old daughter Esther was diagnosed with a pineoblastoma grade 4 brain tumor January 2019. They are extremely rare and under researched. We had to attack it aggressively so we quickly began high intensity chemo with complete bone marrow transplants after doing a biopsy and drilling through the mass to eliviate pressure in her brain. The cancer died quickly and she responded so well, especially given the circumstances. Pineoblastomas have a high fatality rate, so when the doctors made it clear of how well she responded and how rare this great response was, we were elated. We all thought she was going to make it, including the doctors. After chemo, a full body double blood infection, and stomach flu - we proceeded to radiation and did 6 weeks of that. When we finally completed her treatments on august 15th there was call for great celebration and we moved out of the nursing home and back into a new place we could call our own and begin life again. Things were great for a while, about 6 months until we did an mri check up scan on friday the 10th of January. Esther's cancer had come back and metastasized. She has a new mass a ways in the back of her brain and a tiny spot on her brain stem. When cancer has metastasized in the brain there isnt much you can do, it means the cancer cells are all over her brain and spine now, preparing to grow. With the upfront treatment she received plus her age, total cranial spinal radiation has been taken off the table, it could kill her or render her in a vegetable like state for the rest of her life in the chance it did cure her. That day on the 10th, Esther's condition was immediately considered terminal..... Options were discussed, such as the repetitive radiosurgical therapy she will undergo to treat existing mature masses to buy time until new tumors start popping up and cross radiation paths, stopping us from retreating that area, and also possibly taking part of an experimental study... entailing more chemo therapy (also raises her chances of developing leukemia) , hospital time, needle pokes and more. Trials have a whopping 1-2% cure rate, so were well aware what we need to prepare for. Brain tumors are not a quick end, once metastasized the cancer will slowly debilitate the victim slowly by taking away function of things like mouth, arms, and legs for example into they go into a coma and pass. I only go into this detail because it will require much stay at home and special assistance once this time approaches. Right now Esther is without symptoms, and getting ready for her make a wish trip in February to Disneyworld in florida. We hope to rent a car and also take her to the ocean to witness its beauty. All of her family is fighting hand over fist to set their emotions aside to enjoy this valuable time we have left with her and to forfill her hearts desires. I'm setting this limit high because I dont know who or how much people want to donate. There will be alot of time taken off from work to be a caretaker, to mourn, funeral expenses, possible travel and living expenses with a trial, cleaning services, living expenses at home, her make a wish trip, therapy and more. There is no way to prepare for this pain, and for me it dosnt get worse than this. We could use all the help we can get. I have set the goal limit high so that I dont have to go back in and edit anything, so theres no true expectations on what the goal should be, just need all the help we can get. Even more valuable than money, we ask that you pray. There is nothing more valuable than asking God to work miracles in precious Esther. go hug your kids, go tell them you love them and that they are irreplaceable...because they are. Please share