After a perfect pregnancy my mummy and daddy were so excited when labour started, and after a planned water birth, things took a turn for the worse, and things started to go very wrong. After complications I was delivered blue and lifeless and put onto my mummy’s chest. She knew something was wrong instantly and doctors worked so hard to bring me back!
After 15 long minutes the doctors managed to get me to take a breath. But at the cost of my brain being starved of oxygen for all of that time, I had something called Hypoxic Ischemic Encephalopathy - grade 3 (severe brain damage due to lack of oxygen to the brain).
Whilst I spent some time with the nurses in the intensive care unit, a doctor came to see mummy and tell her I was extremely poorly and I wasn’t going to live. Mummy and daddy’s world fell apart as they thought they’d never get to give me a cuddle. I was rushed to a bigger hospital where the doctors started to cool my brain, but after only 32 hours they said an emergency MRI proved I was brain dead and that they must decide to turn off my life support and say goodbye.
After a beautiful night of cuddles and kisses, mummy and daddy gave me a bath and dressed me in my best clothes. And as mummy was saying goodbye, I opened my eyes and begged to stay! Mummy and daddy couldn’t understand what was happening when we were rushed to out local children’s hospice, but they were just glad to hold me. After a long month at rainbows hospice for children, I was taken off of my end of life plan and sent home to be a family! And here I am.
A year later, I am still fighting every day! I have still got severe brain damage, and I have to rely on my mummy and daddy for a lot. I have a wheelchair and I am fed through a tube. I have been registered blind and have recently been struggling with a nasty type of epilepsy called west syndrome. Which is very damaging to my brain and is a life limiting condition. Recently my seizures have returned with a vengeance, and I am struggling with these right now. But doctors hope to start different treatment soon and hope to get it under control.
unfortunately my life is extremely unpredictable and I don’t know what my future holds. But I know I love my family, and I find joy in almost everything. I am so brave when I get an infection and have to go into hospital!! Even though it really takes it out of me! I love spending time with my family, going to play at rainbows hospice, and the lady who comes to play with me and sings to me.
I set up this page with my mummy, to ask for help for treatments, for physio I can’t afford and for equipment I may need. In return I will keep Instagram updated on all of the wonderful things I have been doing. Any any support I receive from this page I will share with people how it is helping me and all money will be accounted for on my page! I thank you, and my whole family thanks you in advance for all of your help and support.
This will allow Oscar to have all of the things he needs without limitations. I don’t know how long I will have to spend with my son, but I know I want to fill it with wonderful things ❤️ Thank you for helping make that happen.
Love from Oscar and family x
- Sam White
- Kirsten Mac
- Nick Morris
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