Thank you for taking the time to read about my sweet Lily.  She is such a character and her smile lights up a room. Lily was born with a rare genetic disorder and because of this suffers from intractable epilepsy. She is 15 and has had seizures daily since she was 4. Sometimes multiple seizures a day that lands her in the hospital. The Dr.'s we have encountered up to this point have wonderful but are not specialists and have not been able to help her.  In addition, this summer alone, even with insurance, we accrued $10,000 worth of medical debt. Lily receives no assistance as I am a public school teacher and the government says I make too much for a family of 4 to provide any medical, monetary or respite care assistance. My husband does not work so he may stay home to take care of our baby girl while I work. 

NOW THE GOOD NEWS!! We have found a specialist in another state that not only understands Lily's disorder but will take her case!! October 10th Lily and I will be traveling to the epilepsy specialist for 4 days of inpatient observation and testing, including a detailed treatment plan! We have hope that Lily can be helped so she can live a happy, healthy life and the Dr is very hopeful too! Our hearts are filled with something we had almost gave up on....HOPE!!!! 

It is very difficult for me to ask, especially with this horrible pandemic that has put so many wonderful people in dire financial straights but we are financially at the end of our rope and do not know what else to do. We have already filed bankruptcy once due to medical bills which I am paying out of my check monthly and have just accrued another 10 grand in medical debt. We are hanging tough, and staying positive but in order for us to travel there and pay the hospital the deductible down payment required we will need a minimum of 1500 by October 10th.  I humbly ask if anyone reading this can help make Miss Lily's trip possible. Absolutely anything would be a blessing. Thank you so much for taking the time to read this and if you cannot help financially I ask for an additional favor...... please keep Miss Lily in your heart! We cannot thank you for all the love and positive energy that we have always felt from everyone we meet!!!