Imagine vanishing.
One day, you are living your life—working, running, laughing. The next, your body pulls the emergency brake. You don't just feel tired; you feel like your cells have run out of energy. You are trapped in a body that punishes you for moving, for thinking, even for breathing.
This is ME/CFS (Myalgic Encephalomyelitis). And for millions of people, this is not just a bad day. It is a life/death sentence.
The Invisible Agony
I am raising funds to break the silence surrounding one of the most severe, yet ignored, diseases in modern history.
The data is shocking:
- Quality of Life: Studies show ME/CFS patients have a lower health-related quality of life than patients with Stroke, Lung Cancer, or Multiple Sclerosis.
- The Burden: Approx. 25% of patients are housebound or bedbound. Some have lived in total darkness for decades.
- The Economic Cost: ME/CFS and Long COVID cost the US economy an estimated $200–$400 Billion annually, yet research funding is virtually non-existent.
Why We Need You Now
Despite the severity, ME/CFS receives pennies in funding compared to diseases with similar burdens.
- HIV/AIDS: ~$3,000 Million funding/year
- ME/CFS: ~$15 Million funding/year (That is ~0.5%)
We cannot wait for governments to wake up. We have to wake them up.
The Plan: Operation Visibility
I am raising money to fund a high-impact, aggressive awareness campaign. I want to make ME/CFS impossible to ignore.
Your donation will fund:
- Billboards & Outdoor Advertising: Placing high-visibility ads in major city centers. We want the public to see the reality of the "Missing Millions."
- Social Media Blitz: Paid placements and partnerships with influencers to reach the younger generation and bypass traditional media gatekeepers.
- TV & Streaming Spots: Producing professional, cinematic commercials that showcase the harsh reality of this illness to a mainstream audience.
How You Can Help
- Donate: Every dollar buys ad space. $10 buys Instagram reach; $100 contributes to a billboard.
- Share: Post this campaign on your story. Send it to 5 friends.
- Speak Up: Use the graphics on this page. Show the world the numbers.
The science exists. The patients exist. The only thing missing is the funding to make the world see.
Join the fight. Bring them back to life.
... did you know?
ME/CFS affects an estimated 1.5 to 2.5 million Americans (and at least 40 millions worldwide). Germany recently counted more than half a million sufferers which more than 1 in 200 people.
Long COVID has triggered ME/CFS in countless new patients, making this more urgent than ever.
There is currently zero FDA-approved treatment
Organizer
