Ena Bruno Memorial Fund
Sadly Ena suddenly died last week at the young age of 43 after her 17 month long battle with Stage 4 Cancer. We lost one of the most beautiful souls when Ena passed away. She leaves behind her husband Peter and their severely disabled son, Jordan Chance.
All of our hearts are breaking and it’s hard to wrap our heads around it. Through all of this heartbreak I feel it’s so important that we come together and rally around Jordan and Peter. That is why I’m starting a memorial fund to help Peter care for Jordan and provide for him just the same as it was when Ena was with them.
Jordan is the sweetest boy you’ll ever meet but helping him grow was a struggle as a two parent team. To date for Jordan has undergone 26 surgeries and 60 times being under anesthesia…Ena was the driving force behind all of his care and she fought to keep Jordan alive against all odds! Jordan had been hospitalized for 31 months straight and for the first time in 5 years, they were able to spend this past Christmas(2020) for the first time outside of a hospital setting, together! It was a dream they never thought would be possible! Every birthday, every holiday, Jordan lived in a Hospital, THEY lived in a Hospital! Jordan has been emergency medivac’d multiple times across the country to multiple hospitals to find the right and rare specialists to fix Jordan’s issues and to keep him alive! Unfortunately, with all of his ailments, Jordan will and always need continued medical care as he still fights with periodic hospitalizations. He requires constant medical care with severe medical needs.
Jordan is such a precious boy and is only 1 of 12 in the world with an extremely rare genetic disorder. With all of his surgeries, through all the pain…he always smiles and is such a happy child! He was diagnosed with Coffin Siris Syndrome(only 80-100 cases worldwide), Pierre Robin Sequence, Hypospadias, Hydronephrosis, Dysphasia, Visceral Hyperalgesia, Gastrointestinal failure, Gastric Outlet Obstruction, G.E.R.D., Cystic Duct Obstruction, Cholecystitis, Global Developmental Delay, Malnutrition, Severe Gastroparesis, Gastric Dysmotility, Feeding Intolerance, Mid Gut volvulus, Gastric volvulus, Intestinal Malrotation, Chronic Anemia, Severe Hypotonia, Pancreatitis(x4), Multiple Blood line infections, Lactobacillus Sepsis, Pulmonary Aspiration, Respiratory infections, Severe OSA’s, Parainfluenza 1, Adenovirus Colitis, Pyloric Stenosis, Pyloroplasty, Respiratory Distress Syndrome, over 8 laparotomy’s, 4 LADS Procedures, Appendectomy, Cholecystectomy, Spinal Cord/Brain surgery of which saved his life and a slew of many other issues way too long to list! He currently has a Gtube, a Jtube placed in his abdomen and is 100% TPN dependent provided through a catheter into his heart. Although long term this is considered fatal, BUT at the moment it’s currently keeping him alive right now! These conditions will mean that Jordan will always be dependent on Pete to take care of him for the rest of this life.
Due to Ena’s passing Peter is just not able to work, he will need to take on Ena’s roll of 24/7 care for Jordan . Peter was about to open his dream European Automotive Restoration business but Ena’s cancer took a turn for the worst and he had to surrender those funds for her medical aide.
Peter & Ena have always planned to be together till the end. They had plans, dreams and wanted to travel with Jordan to give him the best life they possibly could. Everything has changed and I would love nothing more than to bless Peter and Jordan with a memorial fund in Ena’s honor that they can use for medical expenses, bills, housing and just help supplement in times of need. ❤️