Emma & Katrina Fundraiser - TPIRC
Tax deductible
On the weekend of June 10th I'll be at the tip of Long Island to participate in the Montauk Triathalon to help fundraise and create awareness for TPIRC and the SOCAL Food Allergy Institute.
Some of you may know Emma and Katrina have long battled with an immune system disorder that leaves their systems dangerously overreacting to certain allergens. Their specific afflictions relate to dust mites, grasses (Emma) and animal dander (Katrina).
In Emma's case her presentation was extremely severe. As a nine-year old, with no prior warning, Emma suddenly found herself on the ground gasping for air as her immune system's overreaction shut her throat. This turned into a five-year battle with hundreds of these incidents, ambulance rides to the ER and constant life threatening episodes without a moment's notice. My annual school year visits with Emma's incredibly supportive teachers and district nurses to explain how these attacks would present and what they would have to experience were sobering for everyone.
IGE - a bone marrow protein that protects against allergens and parasites had swelled to more than a 10,000 rating in Emma's blood. Without the same presentation, Katrina's level was 20,000. A level of 60 is normal.
With dust mites as the biggest culprit - Webkins, sleepovers with friends, fabric in the house, air travel, hotels and countless other everyday environments (including school over two semesters for Emma) were strictly off limits. As is often the case in any situation where children face severe health challenges, it affected Emma's extended circle including friends and family.
With the help of TPIRC and Dr. Inderpahl Randhawa's ground-breaking research and treatment, Emma and Katrina are now largely symptom free. Emma has not had an attack in over two years and both can now look forward through their own perseverance and courage to living normal lives.
The learning has been immense. What's most clear is that these "rare" diseases in children are less and less rare. Food allergies, pulmonary/asthma conditions and immune system disorders in children are all on the rise. Six million children in the U.S. alone suffer from food allergies.
Dr. Randhawa has selflessly dedicated himself to creating a knowledge, research and treatment center to help patients both survive and live normal lives. In his own words he gives them a chance not only to live but to be "free". Unsatisfied with traditional approaches that deem success "as the ability for kids to eat four peanuts in one sitting", his work has led to a 99% success rate in treating these allergies. In the case of nut allergies, eating 75 peanuts in one sitting is his standard for acheiving success.
Your tax deductible donation will help TPIRC, Dr. Randhawa and the SoCal Food Allergy Institute continue to develop their research to create a sharable knowledge base, provide treatment, develop medicines and establish protocols that will have the ability to help hundreds of thousands of kids live free from their afflictions.
SOCAL Food Allergy Institute - Precision Medicine
Learn About TPIRC
Mighty Montauk Olympic Triathalon
Some of you may know Emma and Katrina have long battled with an immune system disorder that leaves their systems dangerously overreacting to certain allergens. Their specific afflictions relate to dust mites, grasses (Emma) and animal dander (Katrina).
In Emma's case her presentation was extremely severe. As a nine-year old, with no prior warning, Emma suddenly found herself on the ground gasping for air as her immune system's overreaction shut her throat. This turned into a five-year battle with hundreds of these incidents, ambulance rides to the ER and constant life threatening episodes without a moment's notice. My annual school year visits with Emma's incredibly supportive teachers and district nurses to explain how these attacks would present and what they would have to experience were sobering for everyone.
IGE - a bone marrow protein that protects against allergens and parasites had swelled to more than a 10,000 rating in Emma's blood. Without the same presentation, Katrina's level was 20,000. A level of 60 is normal.
With dust mites as the biggest culprit - Webkins, sleepovers with friends, fabric in the house, air travel, hotels and countless other everyday environments (including school over two semesters for Emma) were strictly off limits. As is often the case in any situation where children face severe health challenges, it affected Emma's extended circle including friends and family.
With the help of TPIRC and Dr. Inderpahl Randhawa's ground-breaking research and treatment, Emma and Katrina are now largely symptom free. Emma has not had an attack in over two years and both can now look forward through their own perseverance and courage to living normal lives.
The learning has been immense. What's most clear is that these "rare" diseases in children are less and less rare. Food allergies, pulmonary/asthma conditions and immune system disorders in children are all on the rise. Six million children in the U.S. alone suffer from food allergies.
Dr. Randhawa has selflessly dedicated himself to creating a knowledge, research and treatment center to help patients both survive and live normal lives. In his own words he gives them a chance not only to live but to be "free". Unsatisfied with traditional approaches that deem success "as the ability for kids to eat four peanuts in one sitting", his work has led to a 99% success rate in treating these allergies. In the case of nut allergies, eating 75 peanuts in one sitting is his standard for acheiving success.
Your tax deductible donation will help TPIRC, Dr. Randhawa and the SoCal Food Allergy Institute continue to develop their research to create a sharable knowledge base, provide treatment, develop medicines and establish protocols that will have the ability to help hundreds of thousands of kids live free from their afflictions.
SOCAL Food Allergy Institute - Precision Medicine
Learn About TPIRC
Mighty Montauk Olympic Triathalon
Organizer
Alastair Binks
Organizer
Manhattan Beach, CA
Translational Pulmonary and Immunology Research Center
Beneficiary