Emily and Megan’s scoliosis Journey

EMILY AND MEGAN STORY 

My daughter  Emily Age 12 was diagnosed in March with Scoliosis 40 degree curve we had to go private due to the length of time between gp referral and initial consultation at Musgrave. Since then covid struck and services were halted though progression of scoliosis does not halt. Most services are now all back up and running though scoliosis clinics have still not resumed. WHY??? Our children have been left on the shelf with no means of help, this infuriates me, lots of other parents, consultants and nursing staff alike.

Emily was to be seen again in June but due to no clinics taking place we had to go private for a second time to be told her curve has now increased to 50 degrees with a Severe trunk shift which in turn causes her a lot of pain and discomfort. She has now been placed on the waiting list for spinal fusion surgery with no indication of waiting. How long is a piece of string??? 

If my daughter was an animal she would not    be left to suffer. This is not only affecting her physically but also affecting her mental health and well being.

My daughter dosent have time on her side andSurgery is a must. Please help us meet our goalto take Emily abroad to get the treatment she needs and to start specialist physio to help       with her pain. 

If we can’t get enough raised for surgery we      Will use the money for specialist physio, 
mental health and life coaching and any local
treatment she can avail of.

BAD NEWS  

Emily’s younger sister Megan was diagnosed 10 days after Emily went through her surgery in Tyrkey. 

Megan’s curves are currently sitting at 21 degrees and 39.6 degrees at the age of 10, she also hasa diagnosis of Autism and ADHD so struggles go understand the importance of wearing the braceshe has had specially made to try and slow down the progression of the curves but the likelihood of surgery in the future is high so we are continuing our fundraising efforts to ensure Megan has the same chance at a normal childhood like Emily 

Also any extra will be donated to Megan’s
Wish Charity a Charity very close to our heart who go above and beyond for children with 
scoliosis and their families. 

Thank you to everyone who has taken the 
time to read our story