Let me introduce Joey, Kristen and Emily Watt-Geigel from the Town of Newburgh, New York.  They aren’t just any ordinary family but one whose little girl has been faced with a rough start  in her short life. Emily is a beautiful charismatic four-year-old who unfortunately has been faced

with a rare incurable genetic disease, CARD 10, that affects her organs over time, triggering immunodeficiency and multiple progressive autoimmune diseases.

 

Recently, Emily’s fate changed with this diagnosis; and, the hope of a bone marrow transplant is no longer an option. As of  now, her team of doctors has been searching globally for a specialist who might provide some insight on this rare genetic disease. She has spent a majority of her short life in and out of The  Children’s Hospital of Philadelphia and Maria Ferrari Children’s Hospital, requiring the family to travel frequently to Philadelphia and Westchester  for testing, lab work, procedures, surgeries and doctor’s appointments with a variety of specialists. She also receives weekly, medically-supervised infusions at home. Understandably, this has been extremely challenging for the family emotionally and financially. Additionally, Emily’s doctors have  recommended modifications to their home in order to accommodate her daily living with this progressive disease. This past year they were faced with an additional challenge as Emily’s mother, Kristen,was diagnosed with breast cancer.

 

This family continues to fight everything that comes their way with a positive outlook,  surrounded by family and friends during their difficult journey. Emily’s future is unknown at this  time and the family tries to spend every moment they can with their little girl creating positive memories in a safe manner.  They look forward to her entering Pre-K this Fall with her peers.

 

Please consider helping this family by easing the financial burden they have acquired due to  these unfortunate circumstances.