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So we are the couple that gives everything they have. Time, money or knowledge. I always tell people that the only way someone knows you are in a bind, is to tell them. At least that is what I have always been taught.
Now we are the ones in need. Emily had Kyphoplasty performed on T-5 in 2006. In May of this year we found out the cement from that kyphoplasty surgery leaked into her spinal canal. Since that surgery, she has had pain in her butt and leg and numbness in the vaginal region. Past doctors have all atributed the pain to sciatica and treated it with physical therapy and cortisone shots in her SI joint. Finally one of the doctors did a CT scan and found the cement from the old surgery. Her spinal cord is laying over the top of the cement and is causing the nerve damage. It was highly recommended to remove the cement immediately.
The new surgeon drilled through the vertebrae to access the cement and remove it. Every time he tried to drill the cement out, my wife would lose SSEP electrical signals to her extremities. Basically paralyzing her. After several attempts and advice from a neurologist, he decided to pull out and not cause any harm. He ended up removing part of the vertebrae to decompress the pressure on the spinal cord. That did not work, pain in her butt and leg and numbness in the vaginal region returned after 5 days. With additional new hot stabbing pain in rt shoulder, arm and rt side of neck. New shooting pain in the mid back to left side as well.
This leaves the question what is next for removing the cement as now it is attached to both her vertebrae and to the cord itself. New surgeon does not have an answer. Says possibly someone else could go in from the front, deflate a lung, go around the heart to access. it.....
The case studies we have found only are similar in that the pain after surgery is excruciating and her pain is in the same places as the case studies. The difference is that those other patients’ cement was found within a short time after the original surgery and was promptly removed ending in complete relief. We have not found a case yet where the patient dealt with the pain for years and the leakage was found later in life.
We are reaching out to whoever will listen, hoping someone has an alternative method of removing the cement. We have sent the reports to several neuro spinal specialists and are currently waiting on their responses.
I am a computer guy not a medical guy so any informatiojn or a direction of someone to contact with ideas would be very well received. Thanks in advance. I have copies of all reports and images if anyone is willing to take a peak.
Long story short, We are not asking for a handout but a hand up and are willing to accept most any terms as we are in a desperate situation at this point.
People always say "why did you not come to me? I could have helped at least a little." Well I am not too proud to beg and so I am asking my network. I can accept about any form of payment so please message me if you are able to help a fellow entrepreneur out. Thanks in advance.
Now we are the ones in need. Emily had Kyphoplasty performed on T-5 in 2006. In May of this year we found out the cement from that kyphoplasty surgery leaked into her spinal canal. Since that surgery, she has had pain in her butt and leg and numbness in the vaginal region. Past doctors have all atributed the pain to sciatica and treated it with physical therapy and cortisone shots in her SI joint. Finally one of the doctors did a CT scan and found the cement from the old surgery. Her spinal cord is laying over the top of the cement and is causing the nerve damage. It was highly recommended to remove the cement immediately.
The new surgeon drilled through the vertebrae to access the cement and remove it. Every time he tried to drill the cement out, my wife would lose SSEP electrical signals to her extremities. Basically paralyzing her. After several attempts and advice from a neurologist, he decided to pull out and not cause any harm. He ended up removing part of the vertebrae to decompress the pressure on the spinal cord. That did not work, pain in her butt and leg and numbness in the vaginal region returned after 5 days. With additional new hot stabbing pain in rt shoulder, arm and rt side of neck. New shooting pain in the mid back to left side as well.
This leaves the question what is next for removing the cement as now it is attached to both her vertebrae and to the cord itself. New surgeon does not have an answer. Says possibly someone else could go in from the front, deflate a lung, go around the heart to access. it.....
The case studies we have found only are similar in that the pain after surgery is excruciating and her pain is in the same places as the case studies. The difference is that those other patients’ cement was found within a short time after the original surgery and was promptly removed ending in complete relief. We have not found a case yet where the patient dealt with the pain for years and the leakage was found later in life.
We are reaching out to whoever will listen, hoping someone has an alternative method of removing the cement. We have sent the reports to several neuro spinal specialists and are currently waiting on their responses.
I am a computer guy not a medical guy so any informatiojn or a direction of someone to contact with ideas would be very well received. Thanks in advance. I have copies of all reports and images if anyone is willing to take a peak.
Long story short, We are not asking for a handout but a hand up and are willing to accept most any terms as we are in a desperate situation at this point.
People always say "why did you not come to me? I could have helped at least a little." Well I am not too proud to beg and so I am asking my network. I can accept about any form of payment so please message me if you are able to help a fellow entrepreneur out. Thanks in advance.