My name is Koulla Giordano. My 4 year old son, Emiliano has Type 2 SMA (Spinal Muscular Atrophy).
 SMA is a genetic, degenerative disorder. Without treatment it is deadly.
The link below is a short explanation of SMA. 
https://youtu.be/5mI_ZsWkkc4 

Emi began to show worrying signs that something wasn't right from the age of around 8 months old. He didn't crawl until he was a year old. Although he learnt to crawl eventually, which we were happy about, he was very sluggish and was slowing down as the months went by. He also never rolled and couldn't bare weight on his legs even if we held him in a standing position. 
We finally got some testing done and got a diagnosis. 

We found out Emi had SMA just before his 2nd birthday and it was the worst day of our lives to date.

Fortunately science has come a long way and we were accepted on a clinical trial in the USA. We packed up our house and put our lives on hold for a year while we lived in the USA for Emi to receive treatment.
He received a drug called Zolgensma. It is a 1 time treatment and has done wonders for him. We are truly grateful as he has gained alot more strength since receiving this drug. Unfortunately, this treatment is not a cure and Emi still suffers from weakness, still cannot bare any weight on his legs and is wheelchair bound. 

He is currently in a manual wheelchair and is struggling to get around as he hasn't got the strength to propel himself all day at school.  

We would like to politely ask anyone who would like to help us raise money to get Emi a powered wheelchair.
We would be truly grateful for any donations made.

You would be helping a little boy gain the experience to keep up with his friends at school. He will finally be able to gain his own independence and dignity.
Above all, to be able to play as a child should. 

Thank you in advance

Koulla Giordano 
Giovanni Giordano 
Emiliano Giordano 

❤️