Well, I've been MIA for a few months now due to injury, medical issues etc and really didn't want to make one of these, but we (Ky and I, Ky being my son for those who don't know us) have no choice.

Between my work injuries followed by my worsening medical issues, we are about 1500$ short of rent plus. Being out of work and the bare minimum compensation pay ending, I've exhausted all my savings and have maxed out all credit options. My worker's compensation hearing passed by, and while I was assured we would win, the judge decided the IME doctor was more credible and kept saying my pre-existing conditions were my issue while also stating I had no issues walking before the injury and able to do my job. This gave me 0% permanent impairment, which my treating doctor gave me about 47% combined (27% one foot and 20% the other). I still cannot even spread two of my toes and use my walker in my own home. I also already need a new walker because two of my wheels have lost half the tread and the brakes no longer work. He also had figured in my rare systemic autoinflammatory diseases and came up with that impairment level based on the direct impact of my injuries to my feet. Every single rare disease specialist I see has also said my systemic diseases are not why my feet are this way. While also documenting in my notes severe work injury to feet and it must be important because all records also state my health issues got worse after work injury. While I understand most good doctors can get confused with rare diseases, a judge should not make decisions like that without speaking to an actual expert. Especially now knowing my issues aren't autoimmune, they are autoinflammatory, which means any injury, even minor, can cause whole system inflammation and damage to my organs. Making sense why my health has snowballed since my work injury. I wasn't even on DMARDS and stable before my injuries. If you even just Google minor/major injuries and systemic autoinflammatory diseases at basic information it will state that people with systemic autoinflammatory diseases need to be extremely careful because what shouldn't be a major injury to "healthy" people can cause long term permanent disability/impairment and worsening of systemic inflammation and possibly organ damage to those who have systemic autoinflammatory disease. Do not even get me started on what the stress of all this does, I'm on a potent biologic daily injection, steriods and colchicine which all should suppress all this but now suddenly flaring even more and waiting for insurance approval for a different biologic ( I am very limited on what is safe for me to take). While I am grateful to know mostly what's going on with me this isn't right. I also would much prefer working at my job I loved over using a walker (or cane when the train stops don't have disability accessibility) and being so sick and in pain.

I thought we would be okay, but we aren't, and I am a handful of credits short for disability. We are appealing the judgment, but my attorney says it can take 8-12 months. Also, speaking with a disability attorney to see about some things, especially since now my diagnoses include Refractory Relapsing Polychondritis, Still's like Disease, bx confirmed neutrophilic dermatosis, newer dx sleep apnea, bilateral pulmonary nodules, wearing hearing aids etc etc etc and finally was able to be approved for somatic uba1 mutations linked to vexas syndrome. I also am waiting to get into see the hematologist for the MDS concerns. Gratefully under the care of the geneticist who co-discovered VEXAS but all this still leaves me bound to NYC and the amazing world renowned specialists here until we get a concrete idea of what is going on and what we can do about it (but still du'as, fingers crossed it isn't vexas). Let's just cross it off the list of possibilities.

We really need to make rent on the 1st (or close to the first) and I just don't know what to do at this point. Cannot even think about the holidays for the fam/kids, we are just trying to keep afloat right now. Anything would help and we would be so grateful in the meantime. I also just feel really bad as I've never not figured something out somehow before.