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Embers cause

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Hi,My name is Crystal Segreto,I gave birth 3 weeks 3 days ago to the most beautiful daughter .Unfortunately tho she was diagnosed with Spinal Muscular Atrophy type 1 (if you are interested in knowing what that is it’s genetic) the disease is degenerative and the faster we get on the likelihood of a normal life. Thankfully she has been asymptomatic thus far.We have met with a doctor in Utah (university of Utah) to go over next steps. We have a wonderful 17 month old son who has not shown signs at all but will be getting tested.My loving husband has had to take nearly two months of work at the end of my pregnancy and now due to Embers treatments and having to go to many appointments for her.So we are needing help with rent and some bills for the next couple months while we make sure Ember is doing fine.
Edit: I have up the amount just in case she is in need of medical help later on in life. If you have any questions or want to know more about this disease please message me
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    Crystal Segreto
    Organizer
    Boise, ID

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