This is my daughter Ellie 7 years ago
Ellie was a happy lively 12 year old, until our whole world came crashing down. On July 10th ellie was diagnosed with acute lymphatic leukaemia, two weeks previously ellie had bruises on her legs, which weren't disappearing, she was taken to the doctor for blood tests on Thursday 10th July by that evening ellie was admitted to Sheffield children hospital and diagnosed. Ellie stayed in hospital for a week then was allowed home between treatment. After 2 weeks ellie decided to shave her lovely blonde hair off for sponsors and get toys for her hospital ward.
On the 4th August only 3 weeks in ellie was readmitted with yellowing of the eyes, a few days later we were told ellie had glandular fever that was attacking her liver, she became iller by the day, acting out of character, complaining of headaches.
Saturday 16th August ellie began having fits, 16 in 24 hours, she was taken to high dependency ward, after 3 days she was moved back to her ward even though her words were slurring . Over the next few days her speech deteriated to nothing.
On 21st August ellie fell unconscious, and we were told she had a bleed on the brain, they operated but told it was a fifty fifty chance, the surgeon succeeded ellie was taken to intensive care, she never regained consciousness, over the next few days ellie became very hot, they couldn't get her temperature down.
28th August ellie was rushed back to theatre, she had had a severe brain bleed, once again the surgeon came and told us that he had stemmed the bleeding and was bringing her back to the room, after waiting one hour for her to come back the surgeon came and told us that on the way back ellies brain bled so badly the pressure had shifted her brain, he needed to remove part of her skull, after a long wait they brought her back to us, but the doctors explained that they had done everything they could and we had 1 hour to say goodbye. That evening ellies favourite music was played and all her close family let her know how much she was loved.
The next morning she was still with us the following day the ventilation was turned off and ellie breathed for herself. Weeks passed, while she remained unconscious she was given maintenance chemo to keep the leukaemia at bay.
One day the builders outside the hospital disturbed a wasps nest, they flew through the window and unknown to staff one got under ellies head, she was only semi conscious and unable to speak or move, the wasp stung her numerous times, then her mum noticed the wasp trying to climb down her trachea and noticed her face swelling, how much more would be thrown at this little girl.
Day by day ellie fought, we were told that she may remain in a vegetated state and never recognise us.
Once again ellie proved every one wrong, she became conscious,most recently Ellie spent Christmas on icu with covid and we early lost her again Ellie is today at college she has no use of her right arm and limited movement with her right leg
So Ellie for 6 years has been in her chair she has worked so hard on her physio she's came from just moving 1 finger to being where she is now through the help of my dad but now she needs the extra help with robotics Ellie has been let down by the physios in the NHS for the past 6 years so many times they say there coming then they discharge her and we start again funding cuts, covid ect we have found a private clinic we've paid for intial assessments they say that they can get Ellie on her feet but it comes at a price as its not available on the NHS so we need to raise 7000 for initial block I've tried going down ccj funding route but it's a long process which I'm starting so I'm looking at ways I could raise the cash faster and give her the chance she deserves to walk
Thank you for reading if you could please share for us we would be eternally grateful