Ellie is going to use her walking frame to walk 5K by the end of April!  This is to raise money for The Freya Foundation, who support Ellie and other children with Pyruvate Dehydrogenase Deficiency.  They have also started to fund vital research into PDH, and the only way we will ever find a cure or better treatments is to keep funding.

5k is the equivalent of Ellie walking once around our street, once a day for 30 days,  which might not sound like much but would be an amazing achievement for Ellie!

If you would like to follow her challenge, our Facebook page is called Ellie’s 5K walking challenge