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Hi, this is our beautiful strong little girl Ella. She’s had quite the journey starting of what was meant to be a one night stay in great ormond street ending up being a 6 month stay and it hasn’t ended there after a long time on a ventilator she ended up needing a tracheostomy for her to be able to grow and live her life outside of hospital however we are in and out of hospital with constant viral infection, chest infections needing oxygen. She’s a very outgoing little girl and loves life she also has meobius syndrome which causes facial paralysis however she has the most beautiful upside down smile for a girl that can’t make a sound and can’t smile like everyone else she has the best character she has us laughing every day. Because of Ella’s medical needs we needed to move house for Ella to have her own bedroom as she has nurse care at night time however her windows are extremely old and require new ones being fitted her bedroom is very damp and is starting to grow mould which is not helping with Ella’s breathing this is a very expensive job and any help would be so appreciated.
Organizer
Melissa Ramm
Organizer




