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Our sweet baby girl, Eliza, had bright blue eyes, a dazzling smile, an infectious giggle, and fiery red hair. She was called to heaven at only 21 months old after bravely living with Leigh Syndrome, (a maternally-inherited, neurometabolic degenerative disease; mt-ND5; m.13513G>A).
The goal of Eliza's Light is to honour Eliza's memory by providing support and comfort to other children and their parents in their times of need, especially those with Leigh Syndrome.
We are raising funds to provide specialized medical equipment and/or help with medical costs (not covered by government programs or private insurance) for other children with Leigh Syndrome in Eliza's memory.
(We are also sharing "Eliza's light" by donating hand-knitted neonatal bereavement gowns and blankets to Eliza's children's hospital.)
Hopefully, we can provide a little bit of comfort to the children with Leigh Syndrome and their parents through this support. Thank you so much for helping to share Eliza's Light!
- Elizabeth and Kevin, parents of Eliza.

