Eliyas is a 16-month-old little boy, full of joy, love and determination. He has recently been diagnosed with TUBB4A related leukodystrophy, a rare and life-limiting neurological condition.

As a group “Eliyas's Angels,” we are doing everything we can to give him hope. We are raising funds to access a specialist gene therapy programme in the United States that may help change the course of his condition.

In support of this, we are walking 10,000 steps every day throughout July to raise awareness and vital funds for his treatment, travel, and ongoing care.

We are walking for Eliyas’s future—every step, every donation, every share matters.

And follow his story on Instagram

https://www.instagram.com/eliyastubb4a/ and message us to join the cause

Thank you

Eliyas's Angels xx