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Elena Jillian Amenta

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Elena Amenta was a beautiful and bright light in this world. Her loving family; mom, Summer, dad, Nick, little brother, Luca lost their beautiful Elena girl August 12, 2023 at only 12 years old due to Rett Syndrome complications. Elena touched the lives of many as she lived with Rett Syndrome daily with the most beautiful smile. It could light up the sun. Anyone that has had the joy of meeting Elena and her incredibly supportive, loving and fun family knows how special this family and Elena are. They provided so many fun adventures for Elena & enjoyed them as a family. Rett Syndrome sucks but the Amenta family took it and made the best of life they could with this rare diagnosis and instead enriched Elena’s life to the fullest.

What is Rett Syndrome?

Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions. Still little is known research must continue in order to improve these brave girls lives.

Elena communicated with her smile and expressive, beautiful eyes. If you were lucky enough to see her smile, it could change your day. We will miss her so incredibly much.

The Amenta family would love to be able to share her love and message of Rett through a memorial service. This GoFundMe is to provide funds for her memorial and other expenses related to her sudden end of life and family support. Details of her Memorial services are to follow. Thank you for supporting the Amenta family and learning about Elena and Rett Syndrome. Funds donated will go directly to the Amentas.

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Donations 

  • Jeff Aubry
    • $50
    • 1 yr
  • Paige Greenfeld
    • $50
    • 1 yr
  • Rodrigue Kurkjian
    • $2,000
    • 1 yr
  • Christopher Eaton
    • $312
    • 1 yr
  • Jason Kuttner
    • $100
    • 1 yr
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Organizer and beneficiary

Erica Kastelic
Organizer
El Cajon, CA
Nicholas Amenta
Beneficiary

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