Let's Get Teddy Electric
Our son, Teddy Betts, has complex needs. He was born with a genetic condition which is as yet, undiagnosed and therefore rare. He then went on to catch an infection at 12 days old which led to septicaemia and meningitis, this left him on life support for a week and in hospital for 3 weeks. Sadly the meningitis caused brain damage of which the significance will only show over time. During treatment he also had a blood clot form in his groin which meant that he has lost the use of his right leg which is significantly shorter with almost total muscle wastage and is very scarred. At 6 months old Teddy was diagnosed with hydrocephalus and had brain surgery the following week to have a shunt fitted to allow his body to drain the fluid building up in his brain. This is a lifelong condition and on average children do not reach 10 without having a full revision of their shunt. It is something we keep a constant eye on. Teddy is also visually impaired and has nystagmus although currently it isn't causing any problems because, being only 2 years old, his world is quite close to him. Teddy can now sit independently for a few seconds at a time but is not rolling, crawling, pulling to stand or walking and we are unsure (never say never) whether he will be able to walk. What is for sure is that if he is to develop the ability to walk he will need countless surgeries on his right leg to straighten it and possibly even amputate below the knee to allow a decent prosthetic limb to be fitted.
Developmentally Teddy is delayed but despite the long list of conditions and diagnoses he is an incredibly happy and communicative little boy. His babbling is constant and he is now able to say 'Mama' when hes talking about me. His frustration at not being able to move himself around is very clear now and we are desperate to give him this opportunity. He's desperate to and loves to be thrown in the air and pretending to chase people whilst we push him in his wheelchair but he's ready to learn some independence and have the chance to do what other 2 year olds are doing. Developmentally it will help so much we can't even begin to imagine.
We are hoping to get enough money together to be able to get teddy a power chair to allow him to move himself around. It will literally change his life but it's completely out of reach for us financially.
We have taken a lot of time to weigh up our options over which chair to choose and we have chosen a Tiny Trax (http://www.tinytrax.com/), it grows with the child and therefore lasts for a number of years, normally up to 10 years old but the maximum weight limit is 40kg so it's feasible that Teddy could get more than 8 years use out of it. The chair will cost just over £6,000 including the extra accessories that we will need to allow Teddy to use it. There is no NHS funding for power chairs for young children.
There is an alternative choice which would have been less expensive but it would have only given us 2 years use and then we would have found ourselves having to raise the funds for a Tiny Trax once Ted out grew the smaller chair.
We will obviously be doing what we can to raise as much of the money ourselves but anything that anyone can contribute would be unbelievable, we can't believe the reaction we have had.
Thank you and thank you again!
Ps. If by some miracle of Zeus we win the lottery or funding becomes available as quickly as it was taken, then you can be sure we will reimburse you.
Please take some time to look at the Tiny Trax website and spread the word! Not enough people know that these amazing things exist!
Tiny Trax
We also have a Facebook page where we will add the events that people are putting on to help raise the rest of the money!
https://www.facebook.com/groups/294599927554126/
Here are the links to our events:
Teddy Chair Picnic with Fine Foods Stamford -
https://www.facebook.com/events/569342899920822/?ti=icl
Teddy's Fund Raiser for Thrill Seekers -
https://www.facebook.com/events/1064548603592899/?ti=icl

Developmentally Teddy is delayed but despite the long list of conditions and diagnoses he is an incredibly happy and communicative little boy. His babbling is constant and he is now able to say 'Mama' when hes talking about me. His frustration at not being able to move himself around is very clear now and we are desperate to give him this opportunity. He's desperate to and loves to be thrown in the air and pretending to chase people whilst we push him in his wheelchair but he's ready to learn some independence and have the chance to do what other 2 year olds are doing. Developmentally it will help so much we can't even begin to imagine.
We are hoping to get enough money together to be able to get teddy a power chair to allow him to move himself around. It will literally change his life but it's completely out of reach for us financially.
We have taken a lot of time to weigh up our options over which chair to choose and we have chosen a Tiny Trax (http://www.tinytrax.com/), it grows with the child and therefore lasts for a number of years, normally up to 10 years old but the maximum weight limit is 40kg so it's feasible that Teddy could get more than 8 years use out of it. The chair will cost just over £6,000 including the extra accessories that we will need to allow Teddy to use it. There is no NHS funding for power chairs for young children.
There is an alternative choice which would have been less expensive but it would have only given us 2 years use and then we would have found ourselves having to raise the funds for a Tiny Trax once Ted out grew the smaller chair.
We will obviously be doing what we can to raise as much of the money ourselves but anything that anyone can contribute would be unbelievable, we can't believe the reaction we have had.
Thank you and thank you again!
Ps. If by some miracle of Zeus we win the lottery or funding becomes available as quickly as it was taken, then you can be sure we will reimburse you.
Please take some time to look at the Tiny Trax website and spread the word! Not enough people know that these amazing things exist!
Tiny Trax
We also have a Facebook page where we will add the events that people are putting on to help raise the rest of the money!
https://www.facebook.com/groups/294599927554126/
Here are the links to our events:
Teddy Chair Picnic with Fine Foods Stamford -
https://www.facebook.com/events/569342899920822/?ti=icl
Teddy's Fund Raiser for Thrill Seekers -
https://www.facebook.com/events/1064548603592899/?ti=icl
Organizer
Rose Fab
Organizer