Eira Gault Benefit Fund
Donation protected
We are not the type of people to ask for help, in this situation we must. Her medical expenses and special equipment costs are rising. Luckily she is covered under insurance however they do not cover everything. She is on the o2 monitor and the sensors are 59$ a piece. They usually loose their stickiness in approx. 3 days or so. We have been fortunate enough that the nurses gave us a cpl extra for now but she will need more. We need to purchase a "bed" carseat because she cannot tolerate a regular one due to her Airway being blocked. They are not cheap either and keeping her safe is our #1 priority. On top of all of her stuff our home expenses are out running our income and we are in a tough spot. Thank you to everyone who has already sent money/gift cards to help out. We can't thank you enough for your generosity. If anyone wants to donate to her you can at gate city under her name. It's embarrassing to even post this. We as parents want to be able to provide everything for her, we have no other option but to ask for help. We love you all and couldn't do this without all the mental support from friends and family♡
Eira was born on December 14, 2016, with no signs of an unhealthy baby prior to delivery. Her parents were prepared financially for a healthy baby, but with so many medical hardships they have fallen into hard times. She was born at Essentia and had to be transferred to Sanford to get more extensive treatments with specialists. She is now in need of seeing physicians in the Minneapolis area to determine what the next care plan is for her as she continues to have a hard time with so many problems that do not have answers. She has been out the hospital for a total of 3 days since birth due to setbacks with infections and and for secretions blocking her airways which then she is not able to breath or swallow her saliva which she then can choke on. Eira struggles with laryngomalacia where her Larynx is soft and allows secretions to get into her lungs and aspirate, arthrogryposis where her tendons are too tight which causes her constant pain, and bilateral club feet. She has a small jaw, which affects her airway as well. Her tongue is set back which then pushes on the organs in her throat. She has possible morning glory, which is an eye condition and a double row of eyelashes on her right eye, it won’t be know how much she can see until she is a bit older, she currently does not follow shapes with her eyes only light and sound, which shows that there is some possible loss of vision in her eyes. She also struggles with Severe Obstructive Sleep Apnea, which requires someone to be with her 24 hours a day.
She has had to get a gastronomy tube with a nissen fundoplication, this is where her stomach is wrapped around her esophagus to prevent reflux where her food goes back up and can choke her. She has had surgery for subperiosteal release to release the muscles in her tongue to bring it forward to help with the blockage of her airway with botox injections in her saliva glands to curb secretions to allow her to breath with the help of oxygen.
She has a lot of trouble keeping her airway open. This is our main concern for now. Next, we are concerned about getting her to eat properly. She is working on physical therapy for hands that are in fists all the time, because her muscles will not loosen. Her feet need casting for the next 5 years and a surgery to relax her Achilles tendon bilaterally.
She is on a continuous feed through the g-tube so she doesn't aspirate and choke, this is done every four hours. During the one hour that she has off she is being vented and the supplies are being cleaned out for the next feeding. She is on 8 different medications that have to be administered at many different time throughout the day. The G-tube and the oxygen need maintenanced twice a day. We are also having weekly tasks with sanitizing all supplies. She is on a low flow of oxygen to ensure her oxygen saturation stay up. We have a portable vacuum suction, that we carry around everywhere we go, as well to keep her nose clear since she has a cannula in 24/7 which blocks her mucus from leaving her nose. This buildup is a life threatening problem. Parents are taking shifts which does not allow dad to work at all for the near future. If you would like to help in anyway possible let us know.
Eira was born on December 14, 2016, with no signs of an unhealthy baby prior to delivery. Her parents were prepared financially for a healthy baby, but with so many medical hardships they have fallen into hard times. She was born at Essentia and had to be transferred to Sanford to get more extensive treatments with specialists. She is now in need of seeing physicians in the Minneapolis area to determine what the next care plan is for her as she continues to have a hard time with so many problems that do not have answers. She has been out the hospital for a total of 3 days since birth due to setbacks with infections and and for secretions blocking her airways which then she is not able to breath or swallow her saliva which she then can choke on. Eira struggles with laryngomalacia where her Larynx is soft and allows secretions to get into her lungs and aspirate, arthrogryposis where her tendons are too tight which causes her constant pain, and bilateral club feet. She has a small jaw, which affects her airway as well. Her tongue is set back which then pushes on the organs in her throat. She has possible morning glory, which is an eye condition and a double row of eyelashes on her right eye, it won’t be know how much she can see until she is a bit older, she currently does not follow shapes with her eyes only light and sound, which shows that there is some possible loss of vision in her eyes. She also struggles with Severe Obstructive Sleep Apnea, which requires someone to be with her 24 hours a day.
She has had to get a gastronomy tube with a nissen fundoplication, this is where her stomach is wrapped around her esophagus to prevent reflux where her food goes back up and can choke her. She has had surgery for subperiosteal release to release the muscles in her tongue to bring it forward to help with the blockage of her airway with botox injections in her saliva glands to curb secretions to allow her to breath with the help of oxygen.
She has a lot of trouble keeping her airway open. This is our main concern for now. Next, we are concerned about getting her to eat properly. She is working on physical therapy for hands that are in fists all the time, because her muscles will not loosen. Her feet need casting for the next 5 years and a surgery to relax her Achilles tendon bilaterally.
She is on a continuous feed through the g-tube so she doesn't aspirate and choke, this is done every four hours. During the one hour that she has off she is being vented and the supplies are being cleaned out for the next feeding. She is on 8 different medications that have to be administered at many different time throughout the day. The G-tube and the oxygen need maintenanced twice a day. We are also having weekly tasks with sanitizing all supplies. She is on a low flow of oxygen to ensure her oxygen saturation stay up. We have a portable vacuum suction, that we carry around everywhere we go, as well to keep her nose clear since she has a cannula in 24/7 which blocks her mucus from leaving her nose. This buildup is a life threatening problem. Parents are taking shifts which does not allow dad to work at all for the near future. If you would like to help in anyway possible let us know.
Organizer
Eric Gault
Organizer
Fargo, ND