Help Ella reach her full potential please

Hi, my name is Tayla. I am fundraising for my daughter Ella. When she was born she had a genetic disability that I was unaware I carried. It took two hospitals and a lot of questio and after 2 and a half weeks we finally got a diagnosis.

Congenital Myotonic Dystrophy Type 1 (DM1)

The disability results in cognitive delay fine motor delay and muscle weakness including heart and lungs.

In the last few months, Ella has just started to walk. Due to her muscle weakness, she does not have much stamina. Her whole body get tired easily and quickly.

She also has Scoliosis and kyphosis due to weak back muscles not being able to support her spine correctly.

Her spine is one of three in the world that doctors are yet to figure out how to proceed in helping her.

Ella sees 5 specialist at Queensland Children Hospital witch is a 2 hour drive from Ella’s home.

Ella also had speech therapy, Occasional therapy and Pysio therapy every week 30mins drive from home.

Ella will be attending mainstream school next year and requires an electric wheelchair to keep up with her peers.

Ella will also is it for family outing/events and to participate in community activities

We need a modified vehicle to be able to give Ella every opportunity to participate and get the best out of everything.

Thanks you for taking the time to read