Ehlers danlos research and awareness.

I’m raising money to benefit The Ehlers-Danlos Support UK by completing a 10K on the 25th September 2025, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

I personally suffer with ehlers danlos. There is so little awareness on this condition that affects up to 1 in 500 people across the UK, that it took me 20 years to get a diagnosis. 20 years of people telling me I was dramatic. That I complained too much. That I was making it all up. 20 years of feeling misunderstood and miserable with my physical and mental health. Receiving my diagnosis and learning about the genetic disorder allowed me to accept who I am and the struggles I face. It’s allowed me to understand my body and mind with more clarity. It’s validated the way I’ve felt for my whole life. I’d like to raise awareness on the condition, while also raising some money and awareness for EDS UK that does amazing community work and medical research which is so desperately needed. EDS is such a misunderstood and under researched disorder. I encourage you to read the below from EDS UK elaborating on the work they do, and to educate yourselves on the struggles those around you with EDS, myself included face daily.

More information about The Ehlers-Danlos Support UK: EDS UK was set up in 1987 to support, advise and inform those living with any of the Ehlers-Danlos syndromes (EDS). We aim to help people with EDS live a full, active and positive life. Over 30 years later, we remain the only active UK charity that exclusively represents and supports people with any type of EDS.

EDS UK strives to educate the medical community, promote continuity of care, improve accurate diagnosis and provide information on specialist treatment and management of the condition.