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Harrys world

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Hi all Pat Flannery here. This year my nephew turns 9 years of age. He will also do his communion in May, a big milestone. His strength amazes me everyday. To see how he handles all the obstacles that is in is way is truly inspiring. That’s why this year I will be doing hell and back for Harry. It’s a tough obstacle course but if I have half the strength my nephew has I will fly through it.
As some of you may know Harry was born with a rare condition called Genitopatellar syndrome. This means he was born with an absent corpus callosum(middle part of his brain) he has profound disabilities, non mobile, non verbal, visual impairment, epilepsy, osteoporosis, hiatus hernia, bilateral hydronephrosis, sleep apnea and tube fed. Harry requires 24hr care. I’m raising funds to help the family and to try and ease the financial obstacles that arrive with having a family member with such high medical needs. If you’d like to donate please click on the link below. If you’d like to join me to do hell and back would love to have you on board :-) Many thanks as always. Uncle Pat
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    Organizer

    Maria Flannery
    Organizer
    County Kildare

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