21 year old Haley Jones suffered a debilitating stroke at birth and has suffered from Epilepsy since birth. Her seizures have progressed to grand mal and she continues to have break through seizures despite being heavily medicated. The medication causes memory issues and other unpleasant side effects and the seizures affect her ability to drive, work and live a normal life.
In July of 2014, Haley received a stem cell procedure in Mission Viejo, CA using her own bone marrow. While she has seen amazing cognitive improvements, she has struggled with a couple of breakthrough seizures since the procedure. Our original plans to start tapering her down on her seizure medications has been halted.
After having detailed conversations with her physician, he believes that she needs to get more stem cells in the very near future. The stem cell procedure, not covered by insurance, is quite expensive. We have scheduled another procedure for her on December 3, 2014. We have committed to buying her another stem cell procedure, but after studying this topic extensively, I've come to the conclusion that MORE is better. Her physician is a wonderful man who has provided these services at a near wholesale price because he wants what's best for his patients. We need to take advantage of his generosity and give her as many stems cells as we can. The treatments we provide Haley now will determine the quality of her life and move her toward independent living in the future.