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Hi, my name is Nadine. Mum of two amazing children. Evie (8) and Eddie (5). Wife to Eddie.
I have created this for one of many reasons. Firstly to raise funds for things we can do as a family and any miraculous treatments that could help. Secondly, we will be using any leftover money to help with any charitys and offer donations to those in need also.
Our son Eddie, has the worst type of disease. He is in stage 4 cancer - dipg midline giloma. This is in his brainstem. It is inoperable and although there is radiotherapy available it will only allow an estimated 3 months in addition to what we've been told he has left.
As a family we would reject radiotherapy after I asked Eddie and Our smart boy has expressed he wants to be at home with us. We will do as he asks!
We will not have him suffer through 6 weeks of treatment feeling ill for something that cant be cured or shrunk.
He is so strong, the progression of this disease will take some of his functions away, eye sight, balance, facial numbness and will eventually leave him unable to do most things for himself. We are never giving up hope and believe he will be the one wee HERO to confuse the doctors and their predictions.
As a mother my heart breaks, I do not want him to suffer. I want to make amazing memories in this next year for Eddie and Evie. My husband Eddie and I would appreciate anything that can help us get Eddies dreams to come true. Work is not an option for eddies dad, his work have allowed any amount of time to allow Eddie to have both his parents with him.
Our boy has asked to go on holiday today he loves a sunshine getaway♥️
He loves, football, basketball, nerf guns, monster trucks, Lamborghini's, arcade games, play doh, pirates, dinosaurs, funny books and clips. He loves Messi and Ronaldo.
He loves a good movie and playing jokes on us all. Loves captain America and and all avengers.
We have had a hard past year and although our son has this tumour. We will not let it define his reality now. He has so many friends and amazing family around.
I would never make this or post this publicly, but it is not for me. Everything is for Eddie and his wishes to make as many memories as we can. Time is our only treasure, love is our only motivation and hope is our future.
I have felt the love and support from everyone already through this and it's guiding us on this new path with positive thoughts.
Thanks for taking the time to read this.
Sending love
Nadine, Eddie, Evie and Eddie boy
XxxxX






